Tag Archives: family

Growing up Neurodivergent in Newy

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So, Black Inc Books went and pathologised Autism and related conditions and tried to uphold the medical model and delegitimise self-diagnosis in a world where diagnosis costs thousands of dollars and the trauma of reliving your childhood to get a label you already identify with so you can access NDIS and DSP and other supports. But go off. Click through to Twitter if you want to know how well that went with the Actually Autistic Aussie community there. Apparently they’re owned by a Zionist anyway, so whatever.

I’ve had a huge week, two days at the Sydney World Pride Human rights conference and my Nanna’s funeral and just surviving in between. I’m tired, probably sick, but always up for a rant.

The conference was amazing, 1800 delegates from around the world coming together to reaffirm the fight for our human rights as LGBTQIA+ people and wondering beings. The first session started late, about 45 minutes, which had me cranky since I’d been up since 4.30am to get there. They also had lunch scheduled in for times like 1.45pm…. I know it’s only 15 minutes later, but I feel like lunch should never start later than 1.30pm, Preferably no later than 1,

There were cookies. Many cookies. I feel like I need to learn more about Intersex people and the issues that affect them, and also about how gender is described in Indigenous populations and I need to step back more as a cis white woman and stfu. We need to decolonise at every stage, We need to look at who is not in the room and see how we can bring them in. I was there on an “affordability” ticket that I had to apply to get based on being a concession card holder. It was still $120, so well out of reach for most people I know living on welfare in this country, I put it on Zippay, so it’ll be paid off at some point. There was a panel on economic inclusion which talked about offering training to people to start their own businesses, but it all came down to there needing to be capital, start up funding and grants and microloans. Queer people will continue to need to crowdfund to get their dreams.

There was a roundtable on Thursday about Autistic and Queer identities but I had to miss that for my Nanna’s funeral. It was probably for the best I didn’t travel to Sydney three days in a row, anyway. I got to nap on the trips down which was helpful. I wish the coffee stations were open before the first session! But I guess they want everyone to buy from their cafe. The funeral was fine. I got impatient with an old lady who was asking my father where some other relative was living and I’m lady talk to us at the wake, not right now right after the service. I may not get along great with my father but I’m protective of him. Rah. It’s like when my Aunt died and someone was going off on him on the phone about something and I made my mother take the phone and tell them to kindly leave him the fuck alone.

I look at my family I’ve come from and the one that’s developing. I have queer and neurdiverse niblings on my side and Bruce’s, who’ve come out into this world and what it offers and threatens. I’m here to help them how I can to protect them and celebrate them. I’m going to become a step-grandmother this year, which I’m aiming to embrace and celebrate.

I’ll leave you with two book recommendations of amazing neurodivergent women. First is Anna Spargo-Ryan’s A kind of magic and second Amy Thunig’s Tell Me Again. Two women of around my age growing up in Australia with brilliant minds but fighting their own and their family’s demons around mental health and addiction. So much from both books resonated with me. You never know what people are going through.

I’m two years sober from alcohol. And I’ve done two months straight daily Japanese practice. I like numbers.

And Liptember is OVER!

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So, Liptember is over for another year, and I’m happy that I met my fundraising target, and that I wore lipstick every day, and I tried a few new things, but I’m also tired. Why tired? Well because people around me are. Because while it’s fun to do fundraisers, it’s hard seeing people around you not being supported with their mental health. People accessing all they can – the Medicare rebated psych sessions, medications, GP visits – but that not being enough to make any headway. My sister will feel I’m calling her out with this, and while I am, it’s also half my Twitter feed and a bunch of my Facebook family and friends. They do what they need to to tread water, they maintain, they get things done, they keep on being alive, they keep doing the appointments they have to, to work days, the welfare obligations. But they don’t really get ahead.

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I’m certainly not ahead either, myself, I just managed to get myself to a point where I could convince the government that they were better off giving me DSP that trying to get me into a job that I might just throw away at the first sign of trouble. I had the privilege of being able to front up the cash for private psych and OT, to be able to get into the therapy program that made a difference but wouldn’t “fix” me, to get the reports from the private OT that got me over the line for DSP. So that now I can jump in and out of the real world as I see see fit with a safety net of not losing my DSP backup because I tried and failed at something.

I’m not yet at the point of wanted to do paid external work, but I’m participating more outside myself – I’m more involved with my local Greens’ group and the events and meetings they have, I’m more active online, I’m experimenting with more social media avenues and with Twitch streaming. I’m dabbling around to try and find what I like, and hopefully being useful in the meantime. I’m doing my e-girl and activist things and I really like that. Those things excite me, being online, trying to make a difference, either together or separate, but also just figuring out me.

While also being able to be there for my partner and my sister and their kids. Helping my stepkid get into the right therapy, taking my nephew and niece to appointments, babysitting the little ones, being a sounding board for my sister, making my partner lunch and dinner and keepingΒ  a clean and ordered house so we can relax together in the evenings. Playing with my dog, getting the kids used to a dog. Helping the children learn to be themselves and grow and explore their lives.

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I’m doing what I can and mostly what I want to do and while I’m tired, I like it. I like me.

You can still donate til the 15th for my Liptember, and I’ll wear the lippy of your choice one day πŸ™‚ I still don’t have yellow and threw out a few over the month, but there’s still way too many to choose from.