Category: disability

I just can’t, Jim. I can’t with your surplus.

You are the federal treasurer you can pull the lever at any time to reduce homelessness and poverty. however it means you won't be able to do a press conference boasting about a budget surplus. What do you do?

You’re repeating yourself, grinning over the same shit, so I’m going to repeat myself. I hate the surplus. I hate it when it’s 9 billion or nineteen. I hate it because it leaves my friends suffering with welfare payments below the poverty line. It leaves public school massively underfunded. It leaves public housing being sold off rather than being bought or built. It leaves you and your colleagues grinning at foodbanks, grinning because you’ve funded more charity, grinning while dental isn’t funded for adults. You’re grinning while women are rejected for domestic violence payments, when you could raise welfare above the poverty line and remove partner income tests. You’re grinning a year after the Disability Royal Commission handed down it’s findings while you’re holding your cards close to the chest on what will be allowed in NDIS packages after Wednesday. Grinning about Urgent Care Clinics while GP’s continue to walk away from bulk billing.

Grinning. Grinning. Grinning.

ned kelly hezbollah flag
Nedzbollah

Who CAN we trust with our stories?

After the disheartening response to the Disability Royal Commission finally came out last month, advocates and many others were left in literal tears, wondering what the point of a 4 -year commission that heard the many stories of violence, abuse, exploitation and neglect of disabled Australians was. Again this week, those who gave evidence to the gambling harms enquiry are wondering the same. Why should vulnerable people who have already suffered subject themselves to rehashing their stories for the amusement of government panels who have already seemed to have decided what actions they’ll take no matter how harrowing it gets?

Of course, it’s just everyone else’s turn to learn this after the continued deaths in custody of Aboriginal and Torres Strait Islanders, seemingly not even slowing since the 1987 Royal Commission. The Closing the Gap figures last week were going backwards in essential areas, with the stirred up racism and disappointment of “The Voice” brushed aside by our dear leader, who can’t commit to Makarrata, to Treaty, or even to Truth Telling, which is sorely needed. We need to face the fact that we’re continuing the horrors of the Stolen Generations with child protection policies and locking up Blak kids and that more of the same isn’t getting us anywhere.

And our Governments support for Genocidal Israel is not instilling confidence in their willingness to not continue the Genocide here.

Each day I get emailed surveys to do, to share my story with another Not For Profit, or the Greens (who I’m still deciding whether I’ll renew my membership of, got another reminder text today) or news of another Senate inquiry. I don’t know what to do with these. I fill some responses out myself, when I have the spoons, but I’m reluctant to pass them on anymore. Reluctant to ask that emotional labor of people who are already battling to get through their day-to-day life when I can’t seem to offer them examples of how it will change things for them or the people they care about.

A lot of my people are burning out at the moment, running themselves thin, with family deaths and health issues themselves, wanting to ramp up to see if we can force Labor’s hand ahead of the upcoming election, but also needing to focus on self-care, on mutual aid, on trying to do some positive things too to brighten their lives in the immediate sense.

I’m down a car this week, so out of routine. Bruce’ll fix in on the weekend. But I went across the road for some sun with the dog just now and that was nice, gave me some healing warmth. I’ll catch the train into town tomorrow for group and might make some time to wander along the streets and browse the shops. There’s a few op-shops there I haven’t been to in ages I might pick up something from.

Love yas x

Blue Koala at the rest stop in Port Macquarie

What’s simply “convenient” for you may be an essential disability accommodation for others

Every week there’s discussion on Twitter about convenience and disability accommodations. You’ve probably put your two cents in without even knowing it on a post ruing how you can buy pre-cut fruit at the supermarket, or on a post about the labor conditions of DoorDash workers. You probably weren’t deliberately ableist, you just come at it from your point of view – home delivered groceries from the majors is a convenience for you, a time saver in this busy world, while for others it’s the only way they can do a grocery shop for whatever reason. That reason isn’t really any of your business, but it could be physical ability to carry groceries, energy sapping disabilities that really can’t prioritise browsing the aisles, sensory difficulties that mean supermarkets are hell on earth, and many more. These are some of the people who can’t just shop at Aldi, no matter any price savings that may come from it.

Other people may DoorDash a meal on a day when they don’t have the energy for cooking, after prioritising other mentally or physically taxing tasks in their spoon allocation. They’re likely well away that the delivery driver isn’t receiving minimum wage, and feel guilty. That driver is possibly also disabled or another minority, eeking out a living in this discriminatory world, taking what work comes their way.

A Twitter contact was denied pre-prepared meals in the NDIS plan. These services tend to be only part-funded even if you do get them, but can mean the difference between subsisting off two minute noodles or having to rely on a $60 an hour NDIS funded support worker to cook for you. This particular person loves to cook and can’t do it any more due to their  disability, but instead of accepting this, the OT recommended they get more supports around learning to cook in order to become independent in their cooking. Again, she really wishes she could get back to making meals for herself and even for others but that’s not what life is presenting her, and having to fight the NDIS to acknowledge this and BELIEVE her is also energy-sapping and disheartening.

I was present for my sister’s first NDIS planning meeting this week, and she, like many late-diagnosed AuDHD peeps out there, has a collection of strategies that she uses to get by in this world, that are “ok” but not brilliant and we’re hoping these new supports can help her organise her life into something she thrives in.

Meanwhile, I’m watching and seeing how it goes for her, seeing if medications and therapeutic and other supports actually helps her out before I even consider going down that route for myself. In the meantime I have my own little things in life that people may consider convenience tools but I use to make my life more satisfying and manageable.

One is the meal box delivery services I use, a mainstream tool as an executive functioning aid. I still have to / get to cook meals every night, but I don’t need to get into the planning out of the meals, what and how much of it I need, ensuring what I want makes it home in my shopping, and not having to face the dilemma of what to do if something isn’t available (common for us Aldi shoppers) because I’m there at the wrong time of day. It also makes my actual in-person shops smaller – I mostly buy dairy and eggs or little treats, with extra fruit and veg coming from my foodbank foraging through the week. This means I’m in the store less, get less overwhelmed, and don’t really have to think too much on the spot, I just do the shopping and get out.

The ingredients that came in one everyplate box

I don’t want to just talk about food, but that’s my thing isn’t it? Ever the food blogger, even now. But again what you might see as a treat – seeing a sex worker, having a trip away from your family (or respite stays when you’re caring 24/7 for someone), having a bar fridge next to your workstation – enable you to function and thrive and live your best (disabled) life. If the NDIS doesn’t fund these things, many disabled people (or their carers) won’t have access to them, they will never be a little luxury for them, and they certainly cannot afford to fund many of these things themselves.

So, when you worry about whether something a disabled person is doing or using is necessary, it probably is for them. Unfortunately we’re not at the stage of most disabled people getting to move beyond that, so please watch how you challenge their everyday needs.

 

How being on the DSP has allowed me to stabilise my mental health

I was approved for the disability support pension about two years ago now. It wasn’t a straightforward process, and I was initially rejected, with my request for a review going through successfully without any more information from me. So, how has being on DSP improved my quality of life?

Slightly more money – the partnered DSP rate is currently $826.70 per fortnight, $140 more than the $686.00 I’d be getting on JobSeeker. (source DSS 2023) The difference for singles is more – $347.50 a fortnight extra to use to pay for the basics of life, costs which all agree are more with a disability – studies showing that you need at least 50% more disposable income to live with a disability in Australia. Not that any of the DSP gets to be disposable.

Getting off the Disability Employment Services radar – I’ve had a lot of exemptions from job searching in my time on payments, so for me this meant there was no looming date where I’d have to reengage with DES or have to get a correctly written medical certificate from my non-bulk billing doctor to have them waived again. This was a huge stress relief, not having to apply for jobs I wasn’t ready for, and not having to show up to fortnightly appointments to talk about how my life was falling apart this week and how a minimum wage cleaning job was clearly what I needed to fix my mental health.

Did you know under-35s on DSP have mutual obligations these days? Any disabled person who is failing to meet their “obligations” and getting cut of their payments is clearly being failed by the services that are supposed to be supporting them.

TIME and SPACE – time and space to do the therapies that I was already involved in. When I got DSP, I was doing 4 sessions a week of various therapies – individual and group – for borderline personality disorder and alcohol dependence. I could now just focus on these for awhile. So, I certainly wasn’t sitting at home on DSP, I was doing therapy in person and online, I was practicing getting out and about into the world again after a breakdown that coincided with Covid routine changes and added stresses. I’ve been sober 3 three years now, and certainly the support of having the DSP and not having to meet others expectations around employment have let me maintain that even amongst the rest of the chaos that life brings.

Time and space to figure me out and pursue my own interests and use my skills. I also started to learn the confidence to pace myself properly – I had a therapy goal that was basically following through on things I committed to. Which is two sided – both not chickening out with anxiety or low energy when it all gets too much, but also not letting it get to much – knowing my schedule, knowing how much and what sorts of things I can commit to and only pushing myself as far as I should go. Not saying yes because it’s expected of me, but giving things a go and seeing if they do spark joy. It’s amazing how much energy expenditure varies when you are following an interest!

Time and space to prioritise my “little routine”, allowing myself to see getting up and dressed or putting away the washing as an achievement, and being happy with my day. If I get my little routine together, if I do my chore, make my dinners, then I have more time and space mentally and practically to do more of the things that are generally seen as productive – supporting friends and family, writing and advocacy, maybe even doing a little bit of paid work here and there!

There’s so many goals I’m starting to see as achievable for myself after having this period of self-stability. It’s allowed me to try new things, put my hand up to do things I care about and feel are important, with the knowledge that I don’t have to meet someone else’s expectations to get paid each fortnight. I don’t know if I’ll make it back to earning enough to no longer get the pension, I’d love to do more, be more independent financially, actually have a disposable income, but I have time now. Time and space to dip in and out of the outside world as I can in a way that is of benefit to both myself and everyone else near and dear to me.

I’m certainly not “fixed”. I’m starting with a new psych, but being on DSP means that that would be prohibitively expensive if I hadn’t been able to get in with one that I can see for free for 10 sessions, but only on a Thursday and only from April. I also need to properly explore my neurodivergence, somehow find the energy and the money to get assessed for Autism and ADHD, especially if that would help me at all when it comes with getting even more okay with living in this world.

Just needed to breathe.

How Labor Ensured the Death of Universal Bulk Billing

Yes yes, the LNP froze the Medicare rebates for years, pushing GPs away from being able to bulk bill all their patients, but many still chose to bulk bill, or offered bulk billing to kids and concession card holders. Others moved to private billing entirely, with some offering a slightly lower upfront cost if you’re a cardholder, but not all.

In all the cases where the GP is choosing to bulk bill or take a lower upfront payment they are effectively having to absorb that cost into the practice and have to covered by full fee paying patients.

But the changed to have a different bulk billing incentive for those that have a concession card and those that don’t has certainly stopped some bulk billing non-eligible patients, as they would then be worth $13 less per consultation, and where is the sense of obligation to bulk bill regular patients if they are worth less on the books than those with concessions and kids?

The RACGPs recommends a level B consult fee of just over $100. So, when they bulk-bill a patient, they are accepting a lower payment than if they charged them privately. If they private bill though, the patient will only get the regular rebate back, and that $20 is lost to the empty promises.

Who does the bulk billing incentive apply to? This incentive only applies to the following vulnerable patient groups, and only if they are bulk billed: Children under 16 years Commonwealth concession card holders (Centrelink or DVA cards): Pensioner Concession Card Health Care Card Commonwealth Seniors Health Card How much is the bulk billing incentive? The bulk billing incentive applies to eligible patients as per the following locations: Metro (MMM1): $20.65 Regional centres (MMM2): $30.15 Large-medium rural towns (MMM3-4): $31.95 Small rural towns (MMM5): $34.05 Remote communities (MMM6): $35.80 Very remote communities (MMM7): $39.65

So, when Labor defend the stage three tax cuts with the bulk billing incentives and the chance they make a difference to people’s ability to access the medical care they need, I laugh and cry.

If you’re on $45k, you’re unlikely to have a health care card (you might if you have a family member with a disability) so your 43c a week isn’t exactly going to cover the $90 upfront my GP charges, or the $70 with concession. You might be able to buy some of that “summer sports gear” for a certain upcoming long weekend, but you won’t be able to cover the “$30” meds that went up to $31.60 on Jan 1.

So, while the LNP starved Medicare, by creating a three-tier system, Labor are killing the last of the will for universal bulk-billing. So every time they tout the tripled bulk billing incentive, remember that it only applies to kids under 16, concession card holders and some eligible Indigenous Australians, and so leaves out the precious middle Australia that I thought they were trying to win over? No?

Who even is the Labor target market these days?