aged care – phonakins

Squeaky Wheeling may get Results, but omg it’s Exhausting

I thought I’d hit a wall a week ago, but then I hit a bigger harder one. Because I only slowed down a little but kept going. Burnt myself on the coffee machine, walked of with part of an order, that sorta thing.

But mum got moved to the local private hospital on Monday afternoon. After my emails to the minister et al, after calling it what it was – discrimination – for her not taking her or others because they need hoisting. Not at the stage at going into whether this means all people who need the sort of care mum needs now would be rejected, but they appeased me. For now.

So we’re eating the yummy private hospital food and trying to stay sane, since there’s not really anything to DO there, but exist and be cared for. I’ve not yet asked if the fees still kick in after 35 days but we’ve got a word on a possible place local in “a couple of weeks” so hopefully we’re out by September 11 and don’t have to find out. They don’t cost nearly as much as the places on the northern beaches, but there’s still $550k deposits and ongoing fees for private beds here too.

The 35-Day Rule

Even though I spend an awful lot of time looking at health and welfare stuff, I have A LOT to learn about the stuff that affects older people (generally 65 years + in Australia) outside of my brief grasp of the Aged Pension and how it differs from DSP.

This week’s learnings were about the 35-day rule in NSW public hospitals for “Nursing Home Type Patients“. A “Nursing home type patient is when you’re finished needing the hospital treatment for whatever you came in with (and also anything else that came up along the way) and you’re basically just receiving the level of care a car home would give – this include regular medications if they don’t need adjusting, toileting and shower and other personal care support, and accommodation and meals. After 35 days at this level of care they can start charging “at a rate equivalent to 85% of the aged pension” for care and board.

If you get sick in that time (eg you have another stroke or you get a UTI or a hospital acquired infection) you can moved back to being a regular patient and not charged, but the clock doesn’t reset. Once you’re deemed back in maintenance mode they start charging again.

This is meant to encourage people to get their wiggle on in getting their Nan into an aged care placement. Which might be a nice idea to the bean counters, but families have very little influence on getting those placements once they paperwork is all done. Which are usually done within a month if there’s social work support to do so.

There are no aged care beds anywhere, so charging a daily fee isn’t going to get Grandma into care sooner, it’s just another stressor on the family regardless of whether they can “Afford” it or not. There’s no bed for fee paying residents or fully commonwealth supported ones. If anything this fee should be on the federal government if it’s to incentivise a placement.

After 35 in a hospital after you're deemed well enough for discharge but are stuck because you're waiting for an aged care placement NSW health starts billing you an amount equiv to 85% of the pension for board and care. It can be waived for hardship but yeah should be billed to the feds.

— 💜 phonakins 🍉🌲 (@phonakins.com) 2026-08-20T11:18:31.961Z

The 85% is of the single pension rate, which is going to be $1237.70 a fortnight from September 20, or $933 for a member of a couple. It can be waived for “financial stress” which would anyone relying on the pension for their income, and certainly screwing over the partner of the person stuck in hospital.

The other indexation rates for September 20 are here.

With the scaremongering news that rents are looking to go up 30%, the $2 a week rent assistance increases are, as always, laughable. My rent will increase in December, waiting to see by how much. Last year it was $50/week with the signing of another 12 month lease.

And with the increasing unemployment rate, more are waiting on their extra $8.10 a week and for it to have already disappeared into the nether.

So, mum’s in purgatory, but a slightly quieter one after moving to a smaller hospital, but not the private one that rejected other the day they said she was moving and was packed up and transport on the way, the one that at least two staff at the current hospital have said she should go to and a couple more expressed surprise at the rejection.

So we wait, drink lots of coffee, keep calling the same places just to see and I unfortunately am getting a new area of welfare and health to specialise in complaining about.

It’s August apparently.

If you like this post, have learned something from this or my blaterings on the socials, or just want to help me pay for coffee and petrol (the new hospital is just as far a drive but parking is less crap), my wishlists an paylinks are here.

Waiting

Currently waiting for my new washing machine to arrive. But that’s cool, apparently we’re the next delivery and since they gave us a 3 hour window it’s been pretty easy for a Sunday morning.

Waiting for mum to get an aged care bed. Waiting for her to move to a different hospital to wait for that so she’s not in a depressing dungeon ward with old men dying across from her. The staff are lovely but she really needs to get out. She has a loaner wheelchair so we can take her into the fresh air each day for coffee and a break. Trying to not feel guilty for staying home today but also telling Dad to stay home and rest because he’s really not well and we’re now waiting for his Haematologist appointment on the 24th. His white blood cell count went up again since his last blood test. Mine are normal though. I did bloods last week and they’re all normal.

Waiting on Bruce’s colonoscopy. We’re been waiting 4 months, been told to expect 6. Waiting for mum’s wheelchair of her own. We were waiting for Dad to say okay to building a ramp to the house so mum can at least visit. But he’s said yes to that at least. Now to get him to okay us going to buy a wheelchair friendly mini van.

Budget asks and existential dread

Feeling a bit like Tweek from the 2016 South Park where President Garrison is threatening North Korea and cupcakes don’t solve the problem but I’m here making cupcakes (or muffins or whatever I throw together) feeding myself, feeding others and just trying to get through the days and weeks.

So, the Treasurer says the budget isn’t finalised, while preparing the ground for cuts to the NDIS, while disabled people just want to be supported to live. We want access to pensions that cover the rent and health care and food. We want governments and financiers to stop with the narrative of rorts, and perhaps approve the supports we know we need and know would make disabled lives worth living. We want some certainty.

We want fairer taxation. We want you to spend money housing people rather than allowing people to build their “wealth” and property portfolios while tent and caravan cities pop up.

I want aged and disabled care plans determined by qualified people, not an algorithm. I want the NDIS to stop fighting people who are just trying to survive. I want to know that my mother will be able to go back home after her stroke and get more than maybe one shower a week. I want to know that while I’m probably going to be my mother’s main carer, I’ll have support and equipment and extra paid supports as needed to make that a sustainable an safe undertaking for us all.

I want us to not suck up to genocidal presidents. I want to stop reading that it’s been x hours since a ceasefire started in an article about a town being bombed in Southern Lebanon.

I want a lot. Or not very much if you look at it as just wanting a rich country to support its people to live happy, healthy and dignified lives. That involves housing and welfare for all, adequate and safe disability and aged care. That involves being able to go to the GP when I need to and afford the medications I need to sustain my mental health.

I’m very much still running day by day. There’s equipment trials and a family meeting for mum on Friday. There’s helping my sister out so she can take care of her own mental health beyond what the NDIS will support her and her kids to. There’s walks with my dog and dinner and snuggles with my partner to sustain me. There’s a new Hello Kitty Island Adventure expansion pack and a mochi cafe to run. It’s about balance.

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