Squeaky Wheeling may get Results, but omg it’s Exhausting

I thought I’d hit a wall a week ago, but then I hit a bigger harder one. Because I only slowed down a little but kept going. Burnt myself on the coffee machine, walked of with part of an order, that sorta thing.

But mum got moved to the local private hospital on Monday afternoon. After my emails to the minister et al, after calling it what it was – discrimination – for her not taking her or others because they need hoisting. Not at the stage at going into whether this means all people who need the sort of care mum needs now would be rejected, but they appeased me. For now.

caramel tart with cream with a bit out of it

So we’re eating the yummy private hospital food and trying to stay sane, since there’s not really anything to DO there, but exist and be cared for. I’ve not yet asked if the fees still kick in after 35 days but we’ve got a word on a possible place local in “a couple of weeks” so hopefully we’re out by September 11 and don’t have to find out. They don’t cost nearly as much as the places on the northern beaches, but there’s still $550k deposits and ongoing fees for private beds here too.

The 35-Day Rule

Even though I spend an awful lot of time looking at health and welfare stuff, I have A LOT to learn about the stuff that affects older people (generally 65 years + in Australia) outside of my brief grasp of the Aged Pension and how it differs from DSP.

This week’s learnings were about the 35-day rule in NSW public hospitals for “Nursing Home Type Patients“. A “Nursing home type patient is when you’re finished needing the hospital treatment for whatever you came in with (and also anything else that came up along the way) and you’re basically just receiving the level of care a car home would give – this include regular medications if they don’t need adjusting, toileting and shower and other personal care support, and accommodation and meals. After 35 days at this level of care they can start charging “at a rate equivalent to 85% of the aged pension” for care and board.

If you get sick in that time (eg you have another stroke or you get a UTI or a hospital acquired infection) you can moved back to being a regular patient and not charged, but the clock doesn’t reset. Once you’re deemed back in maintenance mode they start charging again.

This is meant to encourage people to get their wiggle on in getting their Nan into an aged care placement. Which might be a nice idea to the bean counters, but families have very little influence on getting those placements once they paperwork is all done. Which are usually done within a month if there’s social work support to do so.

There are no aged care beds anywhere, so charging a daily fee isn’t going to get Grandma into care sooner, it’s just another stressor on the family regardless of whether they can “Afford” it or not. There’s no bed for fee paying residents or fully commonwealth supported ones. If anything this fee should be on the federal government if it’s to incentivise a placement.

After 35 in a hospital after you're deemed well enough for discharge but are stuck because you're waiting for an aged care placement NSW health starts billing you an amount equiv to 85% of the pension for board and care. It can be waived for hardship but yeah should be billed to the feds.

— πŸ’œ phonakins πŸ‰πŸŒ² (@phonakins.com) 2026-08-20T11:18:31.961Z

The 85% is of the single pension rate, which is going to be $1237.70 a fortnight from September 20, or $933 for a member of a couple. It can be waived for “financial stress” which would anyone relying on the pension for their income, and certainly screwing over the partner of the person stuck in hospital.

Social Security Payment Parameters 20 September 2026 indexation Rates Pension Rates Pension β€” Single β€” Resident Component (per fortnight) Previous Amount 20 Sep 2026 Increase Basic Rate $1,100.30 $1,135.40 $35.10 Pension Supplement $86.50 $88.20 $1.70 Energy Supplement $14.10 $14.10 - Typical Total Rate $1,200.90 $1,237.70 $36.80 Note: also applies to residents temporarily absent (weeks 1 to 6). Note: also includes illness separated, respite care or partner in gaol. Pension β€” Partnered (each) β€” Resident Component (per fortnight) Previous Amount 20 Sep 2026 Increase Basic Rate $829.40 $855.90 $26.50 Pension Supplement $65.20 $66.50 $1.30 Energy Supplement $10.60 $10.60 - Typical Total Rate $905.20 $933.00 $27.80 Note: also applies to residents temporarily absent (weeks 1 to 6).

The other indexation rates for September 20 are here.

With the scaremongering news that rents are looking to go up 30%, the $2 a week rent assistance increases are, as always, laughable. My rent will increase in December, waiting to see by how much. Last year it was $50/week with the signing of another 12 month lease.

Commonwealth Rent Assistance Commonwealth Rent Assistance β€” SSAct β€” Maximum rates Family situation (per fortnight) Previous Amount 20 Sep 2026 Increase Single $219.40 $223.80 $4.40 Single β€” Sharer $146.27 $149.20 $2.93 Partnered β€” Illness separated $219.40 $223.80 $4.40 Partnered β€” Temporarily separated $206.80 $211.00 $4.20 Couple $206.80 $211.00 $4.20 Commonwealth Rent Assistance β€” SSAct β€” Rent thresholds Family situation (per fortnight) Previous Amount 20 Sep 2026 Increase Single $154.80 $157.80 $3.00 Single β€” Sharer $154.80 $157.80 $3.00 Partnered β€” Illness separated $154.80 $157.80 $3.00 Partnered β€” Temporarily separated $154.80 $157.80 $3.00 Couple $250.80 $255.80 $5.00 Commonwealth Rent Assistance β€” SSAct β€” Rent ceilings Family situation (per fortnight) Previous Amount 20 Sep 2026 Increase Single $447.34 $456.20 $8.86 Single β€” Sharer $349.83 $356.74 $6.91 Partnered β€” Illness separated $447.34 $456.20 $8.86 Partnered β€” Temporarily separated $430.54 $439.14 $8.60 Couple $526.54 $537.14 $10.60

And with the increasing unemployment rate, more are waiting on their extra $8.10 a week and for it to have already disappeared into the nether.Β Jobseeker Payment Rates Note: some of the following rates may apply to Special Benefit recipients. JobSeeker Payment β€” Single β€” No dependent children Component (per fortnight) Previous Amount 20 Sep 2026 Increase Basic Rate $808.70 $824.90 $16.20 Energy Supplement $8.80 $8.80 - Typical Total Rate $817.50 $833.70 $16.20 JobSeeker Payment β€” Single β€” With dependent children Component (per fortnight) Previous Amount 20 Sep 2026 Increase Basic Rate $866.00 $883.30 $17.30 Energy Supplement $9.50 $9.50 - Typical Total Rate $875.50 $892.80 $17.30 JobSeeker Payment β€” Single β€” Principal carer of a dependent child Component (per fortnight) Previous Amount 20 Sep 2026 Increase Basic Rate $866.00 $883.30 $17.30 Energy Supplement $9.50 $9.50 - Pharmaceutical Allowance $7.00 $7.00 - Typical Total Rate $882.50 $899.80 $17.30

So, mum’s in purgatory, but a slightly quieter one after moving to a smaller hospital, but not the private one that rejected other the day they said she was moving and was packed up and transport on the way, the one that at least two staff at the current hospital have said she should go to and a couple more expressed surprise at the rejection.

A lime green paper coffee cup with a black lid and sleeve sits on a dark wooden picnic table. The cup sleeve features black text and graphics including Central Catering, Go Market, and a small illustration of a building on a hill. To the right of the cup is a clear rectangular plastic container with a blue latch holding two rectangular slices of frosted pink cake. A metal fork rests inside the container on top of the cake. In the blurred background other drink cups are partially visible including one with a yellow logo. Bright sunlight creates a strong glare from the upper left.

So we wait, drink lots of coffee, keep calling the same places just to see and I unfortunately am getting a new area of welfare and health to specialise in complaining about.

It’s August apparently.

If you like this post, have learned something from this or my blaterings on the socials, or just want to help me pay for coffee and petrol (the new hospital is just as far a drive but parking is less crap), my wishlists an paylinks are here.

Indexation is not an increase, especially if we’re looking at petrol and other hikes due to war

Indexation amounts were released last week, and I’ll personally be getting $10.25 more a week in my DSP and rent assistance. See all the details in the tables here.

Social Security Payment Parameters20 March 2026 indexation Rates Pension Rates Pension β€” Single β€” Resident Component (per fortnight) Previous Amount 20 Mar 2026 Increase Basic Rate $1,079.70 $1,100.30 $20.60 Pension Supplement $84.90 $86.50 $1.60 Energy Supplement $14.10 $14.10 - Typical Total Rate $1,178.70 $1,200.90 $22.20 Note: also includes illness separated, respite care or partner in gaol. Pension β€” Partnered (each) β€” Resident Component (per fortnight) Previous Amount 20 Mar 2026 Increase Basic Rate $813.90 $829.40 $15.50 Pension Supplement $64.00 $65.20 $1.20 Energy Supplement $10.60 $10.60 - Typical Total Rate $888.50 $905.20 $16.70
Pensions from March 20
Commonwealth Rent AssistanceCommonwealth Rent Assistance β€” SSAct β€” Maximum rates Family situation (per fortnight) Previous Amount 20 Mar 2026 Increase Single $215.40 $219.40 $4.00 Single β€” Sharer $143.60 $146.27 $2.67 Partnered β€” Illness separated $215.40 $219.40 $4.00 Partnered β€” Temporarily separated $203.00 $206.80 $3.80 Couple $203.00 $206.80 $3.80 Commonwealth Rent Assistance β€” SSAct β€” Rent thresholds Family situation (per fortnight) Previous Amount 20 Mar 2026 Increase Single $152.00 $154.80 $2.80 Single β€” Sharer $152.00 $154.80 $2.80 Partnered β€” Illness separated $152.00 $154.80 $2.80 Partnered β€” Temporarily separated $152.00 $154.80 $2.80 Couple $246.20 $250.80 $4.60
Rent assistance amounts from March 20

As always, they start accumulating from March 20, so no one sees the full increase pain into their account until at least April, and not til mid-April for some. Standard single JobSeeker is getting a $15.10 a fortnight “boost” (*voms*) as the gov and media love to call it. $7.55 a week isn’t exactly a powerup.

Jobseeker Payment RatesNote: some of the following rates may apply to Special Benefit recipients. JobSeeker Payment β€” Single β€” No dependent children Component (per fortnight) Previous Amount 20 Mar 2026 Increase Basic Rate $793.60 $808.70 $15.10 Energy Supplement $8.80 $8.80 - Typical Total Rate $802.40 $817.50 $15.10 JobSeeker Payment β€” Single β€” With dependent children Component (per fortnight) Previous Amount 20 Mar 2026 Increase Basic Rate $849.90 $866.00 $16.10 Energy Supplement $9.50 $9.50 - Typical Total Rate $859.40 $875.50 $16.10 JobSeeker Payment β€” Single β€” Principal carer of a dependent child Component (per fortnight) Previous Amount 20 Mar 2026 Increase Basic Rate $849.90 $866.00 $16.10 Energy Supplement $9.50 $9.50 - Pharmaceutical Allowance $7.00 $7.00 - Typical Total Rate $866.40 $882.50 $16.10
Jobseeker rates from March 20

Of course, the ACCC had been “asked” to keep an eye on fuel prices, but that’s just about all they’ll do – watch. I can do that too. Which is why when taking the recycling this morning we went to the lil servo and garage at Mirabooka for fuel. I handed them the $50 note Dad had given me and the 5c coin from my Gudetama coin purse and topped it up.

They say we might see an interest rate rise because of the extra inflation of fuel costs and the impact that will have on food and transport costs. I’m sure that in itself will put brakes on already stretched waged-households spending, but sure throw an interest rate hike on top. Gotta play the numbers.

Nearly paid off the power bill, then it’s rego for the Corolla next month. OurΒ  household spending is certainly not all that wild. but as long as Maxi has food and treats we’re going fine.

Corollin’ along

Spending a lot of time in my little Corolla at the moment. Mum had a second brain bleed on the weekend and so while a lot has settled back to a routine since then, we’re all a bit more on edge and really wanting things to keep steady and on the path to rehab for her. I’m taking today away from the hospital, stocked up on snacks and hope to be rested to head back in tomorrow (I will regardless, I just want the rest first – Maxi was nagging me to take my meds last night right on 9pm too and get to bed, so he knows it too).

My nightime pills on a while hello kitty face shape saucer on my desk

Still super appreciating having Everyplate meals ready to cook when I get home – even if they did stuff me around with saying they replaced the parley for a meal with coriander but they’d really replaced the coriander for another meal with the parsley. Neither was a really suitable substitute and I got credits on my account but I don’t really have the brain power for that, so I made up my own substitution for the coriander using some chives I got a week ago in a free fruit and veg bag, and now I realise I DO have parsley, I’m glad I didn’t buy any and will make that meal tonight.

So yeah, trying to look after myself, keep mentally and physically well too so I can keep helping. Trying not to feel guilty about letting other things slide, or being away from the house more, or not being as available.

Mum’s waiting on a rehab bed, bed block is everywhere. The Rehab doctor from that hospital seemed to be estimating about an 8 week stay there once that happensΒ  and then hopefully home. In that time we’ll see what supports she needs to go home and hope that’s organisable and not too much of a fight… And what role I’ll play in that.

Even though the days are long at the hospital I feel better for being able to be there most days because I hate to say it there are days on the wards when patients don’t get all the care they need because they’re short staffed or just have the right amount for no emergencies or other contingencies and me being there means I can help with practical things like meals and helping mum with talking to all the allied health and doctors coming around. She was seen by a gaggle (legit term for them I swear) of final year speech students yesterday for her swallowing and higher language skills and I was trying not to remember how useless I felt on my hospital placements.

Send snax or energy drinks, gift cards or cold hard (electronic) cash if you wanna help me out at the moment, but if you’ve got my on Bluesky or Instagram, a heart on a post here and there goes a long way, because I’m feeling so out of touch with the online part of my life.

A Lack of Best Laid Plans

Fortunately my plans for this year were to focus on family and home, because mum had a stroke Wednesday morning last week and fortunately I don’t have to renege on any commitments because I haven’t made any.

My weekly food posts were already out the window – the Friday before that I had a big day whenΒ  pest controller who was visiting the work site next door slipped and injured himself on a star picket and there was no one else there to help him so I stopped the bleeding and applied pressure for ages until the ambulance finally came.

His boss brought flowers the next day and he and his wife dropped in chocolates and card last week. Which I unfortunately missed cos I was in seeing Mum.

The voucher came in handy for petrol yesterday, and the chocolate have been a comfort. As has Bruce getting takeaway when I couldn’t face even making my EveryPlate meals. They have been perfect this week though, knowing I can come home and whip something up in 30 minutes after a day in human form.

Mum’s doing okay – her right arm and leg are paralyzed but she’s getting a little movement and feeling back. Speech and swallowing okay, and while she’s got some difficulty finding specific words she’s good at working around it. She’ll probably have a stint in the private rehab hospital closer to home once the acute staff are happy to send her there. Dad’s beside himself with worry and very lost.

So, while I’ve been catching up where I can with the online and political goings on, I’m relieved I haven’t committed to anything this year and had already stepped back. Oh, I was thrown a UTI in there for good fun which hasn’t helped with my physical ability to take this on – it’s not that I have to really DO anything extra at this stage – but mentally it’s like feeling like I have to be across things, and knowing that Mum’s my sister’s main support but can’t be there just as the kids go back to school (come on NDIS don’t scrooge them out of some extra support), I’m just hovering hoping there’s not too many pieces to pick up. Knowing I can, but knowing I have to pace myself.

So I have a dentist appointment today, three back fillings, got the front ones and a clean last week, free through public dental after a year on the waitlist. That should sort that for another 5 to ten years right?

If you wanna help me out with petrol or parking costs, coffee at the hospital, or cover a week of dinners or send brekkies, my paylinks and wishlists are here. Love yas!