Language matters but so do your goals

You know how some people use all the right buzz words but their heart’s not in the right place? Usually in activist spaces they talk the talk and can focus on the hot topics, but move on once it’s not cool anymore, or there’s a better opportunity elsewhere. Or, their methods don’t work to lessen or get rid of the root cause of a problem but mainly build systems to sustain bandaids around it. These systems and often businesses will call themselves “not-for-profit” but everyone being paid to do it lives a comfortable life that doesn’t need them to challenge whether they’re doing this the most effective way.

That’s a problem with everything being a business, or using the language of business in charitable endeavours. Are you working to establish new markets or expand your footprint? Are you doing ANYTHING to remove the need for your services? Does your model depend on continuing the status quo – do you need a steady supply of people or animals to keep suffering in order for your day job to continue? Are you treading water on their behalf?  We’re all part of the systems, but it’s great to know where you fit in and question your role in keeping people down rather than actually improving their lot in life.

Do you claim to speak for the voiceless? If a person is conscious, they are likely able to communicate for themselves in some way. Even the pre-intentional or pre-symbolic communicator can communicate with those familiar with how they communicate. But if you’re seeking to be the voice of someone who can actually say what they need and want, what they struggle with and how they can be best helped? You’re probably talking over them rather than giving them the chance to speak to those in power themselves. Help them to learn “they ways” of policy jargon or talking in the media, rather than saying hey look at these people suffering give us money for short term remedies rather than addressing the problem.

You can help people short term, it’s okay. But you have to stop building your lives and businesses around keeping people down.

I’m repeating myself but so long as we’re seeing organisations aiming to expand themselves without daring to mention the causes of the issues – all the while talking for people in need rather than helping them speak for themselves – I’m going to have to.

We’ve announced the new dates for the People Against Poverty Summit – June 21 and 22 up in Maganjin/Brisbane. You can get tickets here – free and low cost tickets are available and people and organisations with money are encouraged to contribute more when booking or donate to the travel fund to enable us to get people in poverty from around the continent to the conference.

Our first online session is on Youtube for those keen to hear from me, Rick Morton and Kristin O’Connell about “Talking about Poverty” in media and online and IRL:

Also, if you’re inspired – get a Break The Poverty Machine tshirt or tote from the Antipoverty Centre store! It’s a great conversation started about tearing down the systems that keep people down in order to sustain themselves.

Housing Relief

Had the six-monthly rental inspection this morning. Spent the week cleaning since I found out about it, and it must have been fine because I got an email offering us another 2 years lease (this was just 12 months to start with) with a $10 increase. So, yes, totally taking that offer up lol it was a one year but still taking it and feeling relieved and going to collapse into a corner with the doggo who hung out with me all morning.


My stephdaughter is signing their first lease today on a place up in Tamworth with their bub, and my sister is exchanging contracts on a house in the suburb we grew up with in just under a month, so lots is going to settle for a bit… stepson’s girlfriend is pregnant and so that’ll be the next challenge, they’re also looking for a place together and saving up for what’s ahead.

So I get that mental settling for another could of years. They can increase the rent annually still but that’s not an concern til late next year anyway. I’m thinking of things I can do now to the place now I know I have another couple of years and in terms of settling into the neighbourhood…
In other news, the People Against Poverty Summit in November has been launched. Tickets are tiered. Facebook event here. I’ll have to organise getting up there etc, but it’ll be nice doing that knowing I won’t have a lease ending the next week! See you there?

Growing up Neurodivergent in Newy

So, Black Inc Books went and pathologised Autism and related conditions and tried to uphold the medical model and delegitimise self-diagnosis in a world where diagnosis costs thousands of dollars and the trauma of reliving your childhood to get a label you already identify with so you can access NDIS and DSP and other supports. But go off. Click through to Twitter if you want to know how well that went with the Actually Autistic Aussie community there. Apparently they’re owned by a Zionist anyway, so whatever.

I’ve had a huge week, two days at the Sydney World Pride Human rights conference and my Nanna’s funeral and just surviving in between. I’m tired, probably sick, but always up for a rant.

The conference was amazing, 1800 delegates from around the world coming together to reaffirm the fight for our human rights as LGBTQIA+ people and wondering beings. The first session started late, about 45 minutes, which had me cranky since I’d been up since 4.30am to get there. They also had lunch scheduled in for times like 1.45pm…. I know it’s only 15 minutes later, but I feel like lunch should never start later than 1.30pm, Preferably no later than 1,

There were cookies. Many cookies. I feel like I need to learn more about Intersex people and the issues that affect them, and also about how gender is described in Indigenous populations and I need to step back more as a cis white woman and stfu. We need to decolonise at every stage, We need to look at who is not in the room and see how we can bring them in. I was there on an “affordability” ticket that I had to apply to get based on being a concession card holder. It was still $120, so well out of reach for most people I know living on welfare in this country, I put it on Zippay, so it’ll be paid off at some point. There was a panel on economic inclusion which talked about offering training to people to start their own businesses, but it all came down to there needing to be capital, start up funding and grants and microloans. Queer people will continue to need to crowdfund to get their dreams.

There was a roundtable on Thursday about Autistic and Queer identities but I had to miss that for my Nanna’s funeral. It was probably for the best I didn’t travel to Sydney three days in a row, anyway. I got to nap on the trips down which was helpful. I wish the coffee stations were open before the first session! But I guess they want everyone to buy from their cafe. The funeral was fine. I got impatient with an old lady who was asking my father where some other relative was living and I’m lady talk to us at the wake, not right now right after the service. I may not get along great with my father but I’m protective of him. Rah. It’s like when my Aunt died and someone was going off on him on the phone about something and I made my mother take the phone and tell them to kindly leave him the fuck alone.

I look at my family I’ve come from and the one that’s developing. I have queer and neurdiverse niblings on my side and Bruce’s, who’ve come out into this world and what it offers and threatens. I’m here to help them how I can to protect them and celebrate them. I’m going to become a step-grandmother this year, which I’m aiming to embrace and celebrate.

I’ll leave you with two book recommendations of amazing neurodivergent women. First is Anna Spargo-Ryan’s A kind of magic and second Amy Thunig’s Tell Me Again. Two women of around my age growing up in Australia with brilliant minds but fighting their own and their family’s demons around mental health and addiction. So much from both books resonated with me. You never know what people are going through.

I’m two years sober from alcohol. And I’ve done two months straight daily Japanese practice. I like numbers.

Black Dog Institute Summit on Self-Harm #BDISummit

Pretty obviously there’s a content note about this post for suicide and self-harm

Thanks to Livingworks, I received a bursary to attend the Black Dog Institute Summit on Self Harm in Sydney last week. It was a huge day, starting with catching the 4.51am train down, so I’ll reflect on it with prompting from the posts under the #BDISummit hashtag

The day before, most of the experts had been at a summit organised by the Lancet on putting together the research from around the world on self-harm and suicide statistics, themes and prevention. Lots of British accents, but also people from around the world. There were people researching self harm in lower and middle income countries and how the reasons for, means, and intentions vary from high-income countries. There were also Indigenous perspectives and reminding us that all the basics, like income above the poverty line, less traumatic emergency department experiences, and compassion in general lead to such great results.

Conference mode means mentos and apparently these fancy glasses that I was so tempted to smuggle out but I was good and stuck to perishables like a banana for breakfast the next day and few tea bags.

Emergency and Inpatient Departments are not fit for purpose

Nearly everyone who has gone to the emergency department feeling suicidal or having self harmed in some way has had one or more bad experiences. If you had a good experience, that is amazing and you probably went on to seek and get treatment and didn’t end up back there. If you do survived the assessment in an unsuitable place without excusing yourself, you face a super long wait for any outpatient therapy, or if you end up in inpatient it can also be a very scary, far from healing experience :/

What use is giving CBT to someone in poverty? 

Well, given the long waiting lists that psychologists have in Australia, the huge gap you’re up for in most instances if you do get in to see someone, we’re not even at the point of being able to see what a good block of therapy can do while someone is subsisting on welfare in this country. Personally I was fortunate enough to do my block f DBT but I wouldn’t have gotten into that if I hadn’t been at the point of self harming and having the right diagnosis, and surviving the year you need to before the program commences. I have too many friends on Twitter (whose demise is distresses for many who have it as their lifeline quite literally when it comes to seeking emotional and financial support)  who saw their mental health stablise when JobSeeker was above the poverty line and mutual obligations were suspended and they were just left to be by a system that is designed to make money for providers without having to give outcomes to “participants”. argh.

Lived and LIVING experience

Interesting discussion at the podium and in the breaks about living experience of self harm and the validity of being able to live a meaningful life while still self-harming. But differentiating this from the person who appears to be well, who is going about their right daily activities, but s struggling or suffering privately. There was discussion around “protecting” the lived experience workforce from further harm as well as allowing those who are participating in research or work to be able to identify for themselves whether they are currently well enough to take part – like me coming to the summit that day and being able to identify if I needed to tap out, or knowing that I would be worn out in the following days from the experience, whether that is just from the early start, social and masking spoons used, or form any more emotional energy from such a heavy topic.

Last of all, what’s an event post with me without the food?

Breakfast was served during the initial session, with mueslie and yoghurt, and mini big breakfast (thankfully without eggs) coming to the table with pots of coffee.

Raspberry and banana bread and fresh fruit at morning tea, along with a nice cold iced tea.

There was hot food at lunch, but I had a couple of chicken rolls and some Greek Salad. I took a couple of rolls for the train ride home for dinner along with some of the fruit at morning tea.

Chocolate slices for afternoon tea – a very sense brownie for me with a little more coffee for the afternoon roll home.

Nice swift train and tram ride home – I wasn’t murdered in the dingy Star casino light rail station which was a relief!

Where to from here? I watched part of a webinar from Lived Experience Australia on how to become a peer worker on Monday, but it was the basic things like do the course and network and find out where you really want to use your skills… And I kinda know that. I also know that I looked up the peer worker course that TAFE NSW runs and immediately realised I don’t yet want to commit to formal study, and so won’t even apply for anything for first semester next year if at all. Maybe 2024. I’m finding that one external engagement outside my own appointments and anything that I take my niblings to is more than enough currently, like the summit, or a modelling day, or a Greens event. And I want to keep doing that stuff. I also don’t know if peer work as such is for me, but I’m glad being a researcher with lived experience of self harm was also modelled at the summit.

And I was also so very excited that on the same day, my blogging buddy Trae was presenting at a conference over in Perth alongside Grace Tame as someone with lived experience of mental illness. Recovery is so cool. But also seeing and hearing my friends and myself thrive after so many years surviving.

Can’t eat resilience – Labor’s Budget had no pleasant surprises

Good morning. Happy Budget Boxing Day, how’s the hangover? There’s not enough water in the world to wash away the fact that people on welfare payments got exactly what was promised and what was expected from Labor’s budget – nothing. A few comments about us being lucky to even be getting the upcoming CPI increases to payments, that cheaper childcare will help somehow, that more free tafe places will help people get into work even though all their other qualifications haven’t. More language about rorts in the NDIS and expected blowouts demonising the wrong people.

Image

For sure, if I was corporate Fiona from this photo I found last night, I’d be benefitting from the promised 6 months paid parental leave (because I still thought I’d be having kids back then). Any promises around childcare were welcomed as she watched speech pathologists and occupational therapists unable to return to work with the long waiting lists in Canberra daycare. She’d be happy with the reduction in maximum PBS medicine costs since she was working and didn’t have a health care card, Her partner had property and she was aspirational. But then, reality took hold and we are where we are now.

I remember getting the small tax cuts back in Howard’s final years. $10 here and there.  Working in community services and health, we all lamented that they should keep the money and invest it in health and education, but we dutifully spend it on latte’s at Coolo.

Labor never promised any raises to Centrelink payments, in fact they backtracked from any talk about them from the 2019 election thinking that the voters didn’t like them pormising anything good. They walked them back to we’ll have a review and maybe look at a real raise in 2024. Which is about when they project real wages to start going up in relation to inflation. In the meantime? We get to remember Labor’s greatest complaints about the LNP and how none of them could ever survive on JobSeeker, but there’s literally nothing in the budget for those on payments. Correct me if I’m wrong, PLEASE correct me if I’m wrong!

Image

These photos? They’re from a blogger event in Sydney in 2012. It was for Kleenex Cottonelle and we broke pintrest because we were trying to pin too many things at once. A wonderful greenwashing promo. That was when i was an Aunty blogger, or a food blogger, depending on who was paying for drinks. I’m wearing the last pair of glasses I bought from a shop in Australia, they set me back $700. $200 for the frames, $500 for the lenses, and from then on it was Chinese online glasses all the way.

I dug out these pics because I got a bursary to attend the Black Dog Institute‘s Summit on Self-Harm in Sydney on November 10 as a person with lived experience of self harm and the mental health system. It’s at Doltone House, the same venue as the Contonlle event, I thought it looked familiar when I was planning the early morning train trip down! I’m really really excited! It’s going to be a huge day, with a 7.30am start, so, a snooze on the 4.51am train down and coffee on arrival please and thankyou! If I recall correctly it was well catered, so I hope they still are!

So, now to plan my days around having the spoons for the summit, for taking it in, for networking and holding conversation with some amazing researchers! The program looks great!

But what do I wear???