So, Labor, are you going to use your power for the good of the vulnerable or for the good of your donors?

Ahh, well, that was a little disappointing. I remember last election, when Labor got in my mental health nurse saying “you must be happy with that result” and I was extremely cautious in my response, feeling like I was expected to be happy, but very much wanting to wait and see how it panned out for me and the causes I care about.

The night before this weekend’s election, Albo wheeled out his childhood and how that set him up for success, and boy were we cynical in response. I mean, Labor has not helped people like his mother at all. Public housing is barely a thing and dwindling slowly. Yes, there may be “social” housing builds but the rent is higher and the conditions less kind to tenants. DSP and other pensions have not gone up this term, despite Labor members claiming so. The only increase in them has been due to legislated inflation and much of that because inflation was so high when Labor came in.

The image displays information about rental affordability for a single person on the Disability Support Pension. On the left, there's a circular icon depicting a person in a wheelchair. Below the icon, the text reads 'Single person on the Disability Support Pension'. Further below, it states '0.1% of rental listings are affordable for a person on the Disability Support Pension.' On the right side, there is a graphic of a dark blue house shape containing the text '100%' and a lighter blue house shape inside it containing the text '0%'.

The $20 a week that Jobseekers and Youth received is long gone and was less than the previous governments increase ($25/week) in real dollars.

Rent assistance for those 14% of welfare recipients who get it has gone up to a whole $100/week max with those two “real” increases this last three years. It still isn’t giving people access to private rentals in this country, with Anglicare’s latest snapshot showing someone like Albo’s mum (who   would have been unlikely to get DSP for arthritis these days but would have benefitted from Labor reinstating single parent payment for kids up to 14)  not being able to afford any private rentals in the greater Sydney area.

A table row with a light blue background. The first column contains the number '4'. The second column describes a family situation: 'Single, one child (aged less than 5)'. The third column lists various Australian government payments and supplements: 'Parenting Payment Single, Energy Supplement, Pension Supplement, Pharmaceutical Allowance, FTB A & FTB B'. The fourth column contains the number '0' in a grey background. The fifth column shows '0%'.

So, on Saturday night I had two reactions, one was disappointment and skepticism that Labor will do anything progressive with their second term and continue as they have the last three years – fiddling around the edges, saying they can’t be too bold, working with the LNP to pass watered down legislation like the NACC through the senate. The other part of me wants to be hopeful that the “just give them time” people actually were right and they will actually be bold this term because they have no opposition to fear losing to. (I really don’t believe this but I WANT to be proven wrong about this for so many reasons)

Our work here has barely begun. We saw the glimmers of hope that there was becoming enough glaring evidence before the election that the suspensions to payments and compulsory activities for JobSeekers and younger disability pension recipients were illegal as well as useless and expensive to administer for few positive and many negative impacts.

It’s time for the Labor government to take seriously its duty of care for poor people and show compassion for us: Urgently increase payments to the Henderson poverty line as a triage measure, and work with welfare recipients to develop a sophisticated measure of poverty. Deliver on the 2022 promise to abolish compulsory cashless welfare programs such as the BasicsCard and rebranded Cashless Debit Card, now known as the SmartCard. Immediately pause all Centrelink payment suspensions imposed on people with “mutual” obligations requirements and remove all compulsion from (un)employment services. Directly invest in buying and building high quality public homes at scale, and abandon the turbocharging of privatisation through “social and affordable” housing policies.

One in 5 adult suicides are on the JobSeeker payment. Fourteen per cent are on the Disability Support Pension.

Something needs to give – payments needs to be raised above the poverty line. The country can “afford” it, it won’t impact your precious inflation in any significant way, and the benefits to the health and happiness of people should be enough to sway even the most miserly. It’s the right thing to do.

There ARE easy fixes, and the government has the evidence it needs to implement them. It just needs to want to do it and stop sacrificing the poor.

6 weeks until the People Against Poverty Summit. Trying to get my rest on so I can get back into helping with preparations and be able to travel u there for in and a few other things we may plan for the week before or after. I worked Friday and Saturday supervising exams which rekt me and gave me a cold, and I’m trying to remind myself I made the right call to decline working the Sunday at the last minute even though the money would have been great it would have knocked me out for the week for sure. Pacing pacing, both physically and socially – it takes a lot out of me.

There was a pre-conference online session last week on running a street kitchen – given the despair some a feeling it’s worth a watch if you want some ideas for help to help people practically in your immediate community.

If you’re in a position to help us with the costs of getting people in poverty to the conference, consider donating here. Or if you’re able to host someone from out of town or want help to attend, check the linktree.

I just can’t, Jim. I can’t with your surplus.

You are the federal treasurer you can pull the lever at any time to reduce homelessness and poverty. however it means you won't be able to do a press conference boasting about a budget surplus. What do you do?

You’re repeating yourself, grinning over the same shit, so I’m going to repeat myself. I hate the surplus. I hate it when it’s 9 billion or nineteen. I hate it because it leaves my friends suffering with welfare payments below the poverty line. It leaves public school massively underfunded. It leaves public housing being sold off rather than being bought or built. It leaves you and your colleagues grinning at foodbanks, grinning because you’ve funded more charity, grinning while dental isn’t funded for adults. You’re grinning while women are rejected for domestic violence payments, when you could raise welfare above the poverty line and remove partner income tests. You’re grinning a year after the Disability Royal Commission handed down it’s findings while you’re holding your cards close to the chest on what will be allowed in NDIS packages after Wednesday. Grinning about Urgent Care Clinics while GP’s continue to walk away from bulk billing.

Grinning. Grinning. Grinning.

ned kelly hezbollah flag
Nedzbollah

Who CAN we trust with our stories?

After the disheartening response to the Disability Royal Commission finally came out last month, advocates and many others were left in literal tears, wondering what the point of a 4 -year commission that heard the many stories of violence, abuse, exploitation and neglect of disabled Australians was. Again this week, those who gave evidence to the gambling harms enquiry are wondering the same. Why should vulnerable people who have already suffered subject themselves to rehashing their stories for the amusement of government panels who have already seemed to have decided what actions they’ll take no matter how harrowing it gets?

Of course, it’s just everyone else’s turn to learn this after the continued deaths in custody of Aboriginal and Torres Strait Islanders, seemingly not even slowing since the 1987 Royal Commission. The Closing the Gap figures last week were going backwards in essential areas, with the stirred up racism and disappointment of “The Voice” brushed aside by our dear leader, who can’t commit to Makarrata, to Treaty, or even to Truth Telling, which is sorely needed. We need to face the fact that we’re continuing the horrors of the Stolen Generations with child protection policies and locking up Blak kids and that more of the same isn’t getting us anywhere.

And our Governments support for Genocidal Israel is not instilling confidence in their willingness to not continue the Genocide here.

Each day I get emailed surveys to do, to share my story with another Not For Profit, or the Greens (who I’m still deciding whether I’ll renew my membership of, got another reminder text today) or news of another Senate inquiry. I don’t know what to do with these. I fill some responses out myself, when I have the spoons, but I’m reluctant to pass them on anymore. Reluctant to ask that emotional labor of people who are already battling to get through their day-to-day life when I can’t seem to offer them examples of how it will change things for them or the people they care about.

A lot of my people are burning out at the moment, running themselves thin, with family deaths and health issues themselves, wanting to ramp up to see if we can force Labor’s hand ahead of the upcoming election, but also needing to focus on self-care, on mutual aid, on trying to do some positive things too to brighten their lives in the immediate sense.

I’m down a car this week, so out of routine. Bruce’ll fix in on the weekend. But I went across the road for some sun with the dog just now and that was nice, gave me some healing warmth. I’ll catch the train into town tomorrow for group and might make some time to wander along the streets and browse the shops. There’s a few op-shops there I haven’t been to in ages I might pick up something from.

Love yas x

Blue Koala at the rest stop in Port Macquarie

What’s simply “convenient” for you may be an essential disability accommodation for others

Every week there’s discussion on Twitter about convenience and disability accommodations. You’ve probably put your two cents in without even knowing it on a post ruing how you can buy pre-cut fruit at the supermarket, or on a post about the labor conditions of DoorDash workers. You probably weren’t deliberately ableist, you just come at it from your point of view – home delivered groceries from the majors is a convenience for you, a time saver in this busy world, while for others it’s the only way they can do a grocery shop for whatever reason. That reason isn’t really any of your business, but it could be physical ability to carry groceries, energy sapping disabilities that really can’t prioritise browsing the aisles, sensory difficulties that mean supermarkets are hell on earth, and many more. These are some of the people who can’t just shop at Aldi, no matter any price savings that may come from it.

Other people may DoorDash a meal on a day when they don’t have the energy for cooking, after prioritising other mentally or physically taxing tasks in their spoon allocation. They’re likely well away that the delivery driver isn’t receiving minimum wage, and feel guilty. That driver is possibly also disabled or another minority, eeking out a living in this discriminatory world, taking what work comes their way.

A Twitter contact was denied pre-prepared meals in the NDIS plan. These services tend to be only part-funded even if you do get them, but can mean the difference between subsisting off two minute noodles or having to rely on a $60 an hour NDIS funded support worker to cook for you. This particular person loves to cook and can’t do it any more due to their  disability, but instead of accepting this, the OT recommended they get more supports around learning to cook in order to become independent in their cooking. Again, she really wishes she could get back to making meals for herself and even for others but that’s not what life is presenting her, and having to fight the NDIS to acknowledge this and BELIEVE her is also energy-sapping and disheartening.

I was present for my sister’s first NDIS planning meeting this week, and she, like many late-diagnosed AuDHD peeps out there, has a collection of strategies that she uses to get by in this world, that are “ok” but not brilliant and we’re hoping these new supports can help her organise her life into something she thrives in.

Meanwhile, I’m watching and seeing how it goes for her, seeing if medications and therapeutic and other supports actually helps her out before I even consider going down that route for myself. In the meantime I have my own little things in life that people may consider convenience tools but I use to make my life more satisfying and manageable.

One is the meal box delivery services I use, a mainstream tool as an executive functioning aid. I still have to / get to cook meals every night, but I don’t need to get into the planning out of the meals, what and how much of it I need, ensuring what I want makes it home in my shopping, and not having to face the dilemma of what to do if something isn’t available (common for us Aldi shoppers) because I’m there at the wrong time of day. It also makes my actual in-person shops smaller – I mostly buy dairy and eggs or little treats, with extra fruit and veg coming from my foodbank foraging through the week. This means I’m in the store less, get less overwhelmed, and don’t really have to think too much on the spot, I just do the shopping and get out.

The ingredients that came in one everyplate box

I don’t want to just talk about food, but that’s my thing isn’t it? Ever the food blogger, even now. But again what you might see as a treat – seeing a sex worker, having a trip away from your family (or respite stays when you’re caring 24/7 for someone), having a bar fridge next to your workstation – enable you to function and thrive and live your best (disabled) life. If the NDIS doesn’t fund these things, many disabled people (or their carers) won’t have access to them, they will never be a little luxury for them, and they certainly cannot afford to fund many of these things themselves.

So, when you worry about whether something a disabled person is doing or using is necessary, it probably is for them. Unfortunately we’re not at the stage of most disabled people getting to move beyond that, so please watch how you challenge their everyday needs.

 

How being on the DSP has allowed me to stabilise my mental health

I was approved for the disability support pension about two years ago now. It wasn’t a straightforward process, and I was initially rejected, with my request for a review going through successfully without any more information from me. So, how has being on DSP improved my quality of life?

Slightly more money – the partnered DSP rate is currently $826.70 per fortnight, $140 more than the $686.00 I’d be getting on JobSeeker. (source DSS 2023) The difference for singles is more – $347.50 a fortnight extra to use to pay for the basics of life, costs which all agree are more with a disability – studies showing that you need at least 50% more disposable income to live with a disability in Australia. Not that any of the DSP gets to be disposable.

Getting off the Disability Employment Services radar – I’ve had a lot of exemptions from job searching in my time on payments, so for me this meant there was no looming date where I’d have to reengage with DES or have to get a correctly written medical certificate from my non-bulk billing doctor to have them waived again. This was a huge stress relief, not having to apply for jobs I wasn’t ready for, and not having to show up to fortnightly appointments to talk about how my life was falling apart this week and how a minimum wage cleaning job was clearly what I needed to fix my mental health.

Did you know under-35s on DSP have mutual obligations these days? Any disabled person who is failing to meet their “obligations” and getting cut of their payments is clearly being failed by the services that are supposed to be supporting them.

TIME and SPACE – time and space to do the therapies that I was already involved in. When I got DSP, I was doing 4 sessions a week of various therapies – individual and group – for borderline personality disorder and alcohol dependence. I could now just focus on these for awhile. So, I certainly wasn’t sitting at home on DSP, I was doing therapy in person and online, I was practicing getting out and about into the world again after a breakdown that coincided with Covid routine changes and added stresses. I’ve been sober 3 three years now, and certainly the support of having the DSP and not having to meet others expectations around employment have let me maintain that even amongst the rest of the chaos that life brings.

Time and space to figure me out and pursue my own interests and use my skills. I also started to learn the confidence to pace myself properly – I had a therapy goal that was basically following through on things I committed to. Which is two sided – both not chickening out with anxiety or low energy when it all gets too much, but also not letting it get to much – knowing my schedule, knowing how much and what sorts of things I can commit to and only pushing myself as far as I should go. Not saying yes because it’s expected of me, but giving things a go and seeing if they do spark joy. It’s amazing how much energy expenditure varies when you are following an interest!

Time and space to prioritise my “little routine”, allowing myself to see getting up and dressed or putting away the washing as an achievement, and being happy with my day. If I get my little routine together, if I do my chore, make my dinners, then I have more time and space mentally and practically to do more of the things that are generally seen as productive – supporting friends and family, writing and advocacy, maybe even doing a little bit of paid work here and there!

There’s so many goals I’m starting to see as achievable for myself after having this period of self-stability. It’s allowed me to try new things, put my hand up to do things I care about and feel are important, with the knowledge that I don’t have to meet someone else’s expectations to get paid each fortnight. I don’t know if I’ll make it back to earning enough to no longer get the pension, I’d love to do more, be more independent financially, actually have a disposable income, but I have time now. Time and space to dip in and out of the outside world as I can in a way that is of benefit to both myself and everyone else near and dear to me.

I’m certainly not “fixed”. I’m starting with a new psych, but being on DSP means that that would be prohibitively expensive if I hadn’t been able to get in with one that I can see for free for 10 sessions, but only on a Thursday and only from April. I also need to properly explore my neurodivergence, somehow find the energy and the money to get assessed for Autism and ADHD, especially if that would help me at all when it comes with getting even more okay with living in this world.

Just needed to breathe.