Tag: disability

Sure, I’ll answer some questions!

A journalism student sent me an email and asked me some great questions about welfare in this country. Since I got right into the answers, I though I’d share them here.
 
 
Firstly, one of the statements of yours that I found most interesting was a post you made on X regarding the federal government prioritizing quelling inflation and maintaining a surplus over raising welfare to a liveable standard. Do you believe that the Australian government prioritizes the aesthetics of certain macro-economic factors such as the lowering of inflationary statistics over adequately providing support for government assistance recipients? If so, what message does this send to those utilizing welfare payments?
 
The government and opposition both definitely prioritise the look of the main inflation rates, of interest rates, or employment and unemployment numbers over supporting those who are doing the heavy lifting on those numbers being what they are – the pensioners and other welfare recipients, along with minimum wage workers whose incomes cut them off welfare before they meet the poverty line let alone the cost of living in this country. The narrative of the dole bludger persists and is reinforced by the government. In the workforce Australia inquiry last year Julian Hill used that term when questioning witnesses, despite protesting that Labor were in favour of stopping that narrative
 
 
 
 
Additionally, do you believe that the current disability support pension, as well as the bi-yearly rate update system, are adequate in facing consistent cost of living pressures?
 
The bi-yearly update is fine, 3 monthly would catch us up faster though. As it is the fact that the indexation is only as a percentage of the person’s current payment mean the lower payments increase less even though they are further behind laready. The 12 monthly for youth payments is completely inadequate and yes another reason along with those payments being severely inadequate that youth payment rates for welfare need to be eliminated. The disability pension while above the rate of JobSeeker is not adequate to support a person with long term illness and disability, with estimates of a disabled person needing at least 50% extra disposable income than average to meet the extra costs that come with it. Also, any fiddling with the amount of hours disabled people and people on the aged pension or carers can work is meaningless to most on those payments as being disabled or a carer is a full time job already, and aged pensioners should be able to retire in peace, and use any extra energy for the things they enjoy, and often contribute unpaid to their families and communities through care and volunteering already.
 
 
 
And finally, how do you think failures in support impact government assistance recipients in times of economic stress such as this?
 
People are suicidal, to be blunt. Welfare recipients end their own lives at a much higher rate than those not trying to survive on these payments. The injection of cash during the Covid shutdowns that brought JobSeeker to the poverty line was a welcome relief, along with the suspension of harmful mutual obligations, that led to less suicides by people on welfare payments than outside that time. The informal and formal supports that others who are working and able to give money, time, share their resources with their neighbours is cut down when everyone else is cutting back on spending in order to survive themselves during rapid rent and mortgage rises and costs of essentials like food and energy leaving people struggling. It is offensive to see governments giving more money to increase the resources of food banks and other support that should be on the pointy end – money for overheads like huge warehouses or trucks to shuttle donated food around, staffed by volunteers and work for the dole who can’t afford to shop at supermarkets either, while these organisations solicit donations from people at the checkout and corporate donors and everyone gets a feel good photo. Politicians should be ashamed to expand these while not addressing the inadequacy of welfare payments.
 
I think I got carried away. You’re welcome.
 
Fiona
 

Skill-up marginalised people, because we can’t ethically put you through our lived experiences

Birds of a feather? Catherine Caine and Fiona Moore

So the Anglicare panel went well, just wended up being me and Catherine from AUWU (my boss) as Nathan from Hunter Jobs Alliance was unwell, so more intimate, but yeah, I’m exhausted but it was good and I think we got some great messages across.

Much of the discussion was around supporting people with lived experience – whether poverty, mental illness, disability, trauma and so on – to use our experiences to drive change and how that could work better and be better for all involved. Catherine reflected on how AUWU have pulled back from getting unemployed people to give testimony at Senate and related hearings as going through that trauma or telling their stories in such as forum, while cathartic for some, is re-traumatising for others and, like I’ve previously discussed, the limited lip-service paid and feeling otherwise ignored is starting to get to even the most experienced advocates. It doesn’t mean we won’t support each other and anyone who wants to tell their story to do so, but it’s about being more selective about where and when and how that occurs. AUWU and the Antipoverty Centre being able to pay people to write their stories when we get editorials weeks at Power to Persuade is one. Connecting welfare recipients with journalists and publications we know have been sensitive and accommodating is another.

Another is getting marginalised people into the roles where the changes are being made. And not just to be consulted, to be asked questions and hope your thoughts are included in the end product. Yesterday we called for marginalised people to be included from start to end, and treated (and paid) as equals. We may not have the skills or experience or qualifications in policy writing, in media, in being CEOs, in stats, but those are all things that can be taught. Unlike, as I argued, lived experience.

You can’t, ethically, give people genuine lived experience of poverty, disability, trauma and so on. You could cosplay it for a few weeks for a tv show, or be blindfolded for the day, or be a carer of someone who’s lived the experience, but you won’t genuinely have lived experience, as it always comes to an end.

So, identify talent within the community you support and look at how that enthusiastic person can be supported to develop the skills necessary to work with you on that project, to take your job, to be your boss. Invest in people.

Appreciate this post? Support me.

 

Odds are, Bill, the sun WILL come out tomorrow, but the vulnerable will be worse off, and I don’t see Labor changing that any time soon

So Bill thinks we’re all getting a little hysterical when we say that people will die because of the NDIS legislation they’ve pushed through with Pauline’s help. He tells us not to be anxious and that the sun’ll come out tomorrow. I know it will Bill, it’ll be above average temperatures all week on the East Coast and all. But people will be worse off, and have their care needs neglected because of your legislation. They will also be more vulnerable to taking their own lives because of losing supports that keep them safe and healthy, and because of punitive Robo whatever actions you’re overseeing with the lovely staff leftover from Robodebt that have found new lives in the NDIA compliance teams.

I’m not going to put in links to reference this post, I’m sick, and have a GP appointment at 12.15. One that I get to pay $80 upfront for because your government has not helped Medicare bulk billing, and nowhere around here routinely bulk bills concession card holders anymore.

Jimmy’s also promised that he won’t do anything on the welfare end either in the lead up to the election. So, we don’t have to worry about being hopeful or disappointed and we can move straight into getting the Greens and Independents to promise real action on welfare. We have all the evidence that lifting welfare to the poverty line won’t affect Jim’s Inflation, but Labor won’t help us, so it’s time to go around them. Jimmy said this morning there’ll be a March budget ahead of the May election. So that’s his last chance to disappoint us and tell us he thinks we deserve poverty to make his bottom line look nicer.

Are you a unionist? How are you feeling about the Labor- Union relationship with the CFMEU? You don’t have to think that the CFMEU are good or bad to agree that it seems a bit of overreach and a real threat to the union movement to have worked with the LNP to impose 3 years administration….

So, I want a magic answer from the GP, I need to this cough gone. It’s getting in the way of me actually getting out and doing the things I’m otherwise ready to do mentally. I need to be able to talk. And yell. And scream. And rage against this fucking machine.

Middle fingers up til the reaper shows up.

What’s simply “convenient” for you may be an essential disability accommodation for others

Every week there’s discussion on Twitter about convenience and disability accommodations. You’ve probably put your two cents in without even knowing it on a post ruing how you can buy pre-cut fruit at the supermarket, or on a post about the labor conditions of DoorDash workers. You probably weren’t deliberately ableist, you just come at it from your point of view – home delivered groceries from the majors is a convenience for you, a time saver in this busy world, while for others it’s the only way they can do a grocery shop for whatever reason. That reason isn’t really any of your business, but it could be physical ability to carry groceries, energy sapping disabilities that really can’t prioritise browsing the aisles, sensory difficulties that mean supermarkets are hell on earth, and many more. These are some of the people who can’t just shop at Aldi, no matter any price savings that may come from it.

Other people may DoorDash a meal on a day when they don’t have the energy for cooking, after prioritising other mentally or physically taxing tasks in their spoon allocation. They’re likely well away that the delivery driver isn’t receiving minimum wage, and feel guilty. That driver is possibly also disabled or another minority, eeking out a living in this discriminatory world, taking what work comes their way.

A Twitter contact was denied pre-prepared meals in the NDIS plan. These services tend to be only part-funded even if you do get them, but can mean the difference between subsisting off two minute noodles or having to rely on a $60 an hour NDIS funded support worker to cook for you. This particular person loves to cook and can’t do it any more due to their  disability, but instead of accepting this, the OT recommended they get more supports around learning to cook in order to become independent in their cooking. Again, she really wishes she could get back to making meals for herself and even for others but that’s not what life is presenting her, and having to fight the NDIS to acknowledge this and BELIEVE her is also energy-sapping and disheartening.

I was present for my sister’s first NDIS planning meeting this week, and she, like many late-diagnosed AuDHD peeps out there, has a collection of strategies that she uses to get by in this world, that are “ok” but not brilliant and we’re hoping these new supports can help her organise her life into something she thrives in.

Meanwhile, I’m watching and seeing how it goes for her, seeing if medications and therapeutic and other supports actually helps her out before I even consider going down that route for myself. In the meantime I have my own little things in life that people may consider convenience tools but I use to make my life more satisfying and manageable.

One is the meal box delivery services I use, a mainstream tool as an executive functioning aid. I still have to / get to cook meals every night, but I don’t need to get into the planning out of the meals, what and how much of it I need, ensuring what I want makes it home in my shopping, and not having to face the dilemma of what to do if something isn’t available (common for us Aldi shoppers) because I’m there at the wrong time of day. It also makes my actual in-person shops smaller – I mostly buy dairy and eggs or little treats, with extra fruit and veg coming from my foodbank foraging through the week. This means I’m in the store less, get less overwhelmed, and don’t really have to think too much on the spot, I just do the shopping and get out.

The ingredients that came in one everyplate box

I don’t want to just talk about food, but that’s my thing isn’t it? Ever the food blogger, even now. But again what you might see as a treat – seeing a sex worker, having a trip away from your family (or respite stays when you’re caring 24/7 for someone), having a bar fridge next to your workstation – enable you to function and thrive and live your best (disabled) life. If the NDIS doesn’t fund these things, many disabled people (or their carers) won’t have access to them, they will never be a little luxury for them, and they certainly cannot afford to fund many of these things themselves.

So, when you worry about whether something a disabled person is doing or using is necessary, it probably is for them. Unfortunately we’re not at the stage of most disabled people getting to move beyond that, so please watch how you challenge their everyday needs.

 

Shedding this Well-meaning White Woman Persona

7 white women in formal wear

Mother knows best, they say. But sometimes mother takes too much time considering Father’s feelings and need for things to remain the same forever and bites her tongue at the key moment to keep the peace, and nothing changes, or, it gets worse.

Why yes, I am a well-meaning white woman. And *gasp* I used to be a lady who lunched, flying to different capital cities, but mostly Melbourne, to discuss the future of that well know white woman profession, Speech Pathology. (I was ACT Branch president of Speech Pathology Australia for 4 years, and there were many white woman lunches). I’m white, university educated and if I didn’t have all this anxiety I’d probably exude a little more authority on topics I may speak on, even if I speak over someone with better ideas and more experience. But does this actually help the situation? Do we achieve the incremental change that was probably coming anyway, thank the bread givers for the crumbs and wait for the next convenient time to ask for a little more? Or do we push harder, and make people uncomfortable, and make them question their priorities. Is my priority the seat at the table or making sure there’s more diversity at the table, or is it flipping the kitchen table and finding a new way to have this conversation?

Well meaning student speech pathologists

Well-meaning white women are well skilled in trying to achieve what is important FOR the people they advocate for. I’ll go back to speech pathology because it’s where I’ve been for an example. It’s important that Grandad doesn’t aspirate on liquids after his stroke right, because this might lead to a chest infection and aspiration pneumonia can lead to death. So it’s important FOR Grandpa that, since there’s evidence he aspirates on his beer with his mates (some goes into his lungs rather than being swallowed cleanly), he is advised that he mustn’t drink beer any more, or perhaps have it thickened to a safer consistency. Grandpa smiles and nods at the young lady offering this advice and thickener samples, but then has a beer anyway, dealing with the coughing and the risk this yeasty treat might cause him.

But what’s important TO Grandpa here is the ritual of having his beer. It’s being able to have that normality after other aspects of his life have been taken away from him after the stroke. He may not have his license any more so has lost that independence, or he takes his other beverages thickened when at home – his wife thickens his tea and he reluctantly sips from a thickened bottle of cordial to stay hydrated in summer. But he knows the risks he takes, he’s read the brochures from the health service, he’s discussed it with his wife. So there’s duty of care and dignity of risk.

Another classic well meaning white woman is the child protection worker, who of course has a myriad of factors to take into account for a child’s safety, but may not consider that cultural safety is just as important as not being exposed to certain dangers. It’s a fine line that the well-meaning white woman walks, with policies and procedures, her own experiences and ideas of what’s right, and the threats to the status quo of trying things a different way. I don’t envy those roles, I probably could work in them and then find myself burnt out so fast from trying to just get it right.

But it’s when there’s not an imminent danger when the well-meaning white woman’s reluctance to ask for, or to DEMAND more, from those running the show or holding the purse strings needs to be examined, picked apart and thrown out. She needs to be willing to stop playing nice, stop upholding her place at the table, stop being so deferent and polite about it all. You need to start pulling your support when they just keep pretending to listen to you but then give nothing.

Lidia Thorpe at the Midwinter Ball

I’m referring here to all the committees and consultations that have come and gone over the first two years of Labor in the disability and welfare spheres. The Voice referendum and how quickly nothing came of that once the no vote was clear. How Lidia Thorpe and other Blak women who pointed out the obvious flaws of the Voice as it stood were thrown under the bus to keep things nice within their parties and organisations. How the Economic Inclusion Committee, run by well meaning white woman Jenny Macklin, put their evidence based arguments for significant increases to welfare to the Labor party that neat two weeks before budgets TWICE, in order to there be nothing done, and for ACOSS and other saying Thank you for $20 here and there, and more money for Commonwealth Rent Assistance that just pushes rents along their merry way and doesn’t achieve change in the lives of people who don’t have a roof over their head or if they do can’t afford the other necessities in life.

How you can have another post-budget lunch with the treasurer and listen to his spiel on “responsible” measures that don’t impact inflation, but don’t impact anything else really. Jim Chalmers refers to the conversations Australian families are having around their kitchen tables, about what he thinks they are talking about anyway. If you have a kitchen table, what are your conversations about? The people who are left behind are still left behind, and fall even further behind if you don’t even let them catch up.

Julian Hill was in my dreams last night, I was remembering before the start of the most recent Workforce Australia enquiry he had a video call with some of use from AUWU and the Antipoverty Centre, telling us how much he looked forward to our input and how much he valued our lived experience. And then he proceeded to reaffirm the myth of the dole bludger and the value of work for the dole at any chance he got. And what did we get from that? More reassurance that better things aren’t possible and that the status quo must be maintained. And there’s still silence on what the government will do about the recommendations from the Royal Commission into Violence, Abuse, Neglect and Exploitation of People With Disability. So we see more puff pieces about scented candles being made for sub-minimum wage while their employers make money off their labour and have expenses covered by the NDIS but crickets on raising the wages of disabled people to the same level as everyone else. They’re supposed to go to half the minimum wage this year and to minimum wage by 2034, in case you were wondering what was recommended.

So, while these little committees and organisations may look nice, if you’re not working to include the voices of “others” – those actually affected by the policies you make you crust discussing day in day out, to actually listen to them, to amplify them, to give them prominence about your own, are you actually going to achieve change, or are you working to maintain the status quo, to ensure your organisation keeps getting a seat at the big boys table, the funding grant, because you tell them what they want to hear and let them make the bare minimum change. You get your car lease renewed for another year, your seat in parliament, and they system keeps ticking along while nothing really changes and people continue to suffer.

Palestinians don’t have ten years for nice little motions that maintain the status quo, that uphold apartheid Israel. Homeless people are dying in the cold, but, sure, worry about how raising welfare to the poverty line might affect inflation (when your committees say it won’t) and continue to cosplay homelessness in CEO sleepouts in secure underground carparks, while you have the power to legislate meaningful, immediate change.

So, as a well meaning white woman, I need to step back and reflect on how I’m enabling the status quo by allowing other voices to be silenced because they don’t use the right words or have the right educational background. Am I just paying lip service to lived experience or am I amplifying the knowledge and strengths of people whose voice may not be so polite and tidy, but have the knowledge and the experience to express the need for real reform.

Even if you think you can say it better, stand back, give someone else a chance. They may very well be better than you. Isn’t that scary?