Let’s look at the Draft National Autism Strategy

So it was Autism whatever day yesterday, so the government got to announce what they’re gonna try to do to make sure there’s no immediate Autistic Uprising. One of those things in Australia was announcing the Draft National Autism Strategy, which I’m going to read through and react to here.

Before I read it, what do I want?

  1. Timely, affordable assessment and diagnosis of Autism and related conditions like ADHD. Ultimately free to the person being assessed, paid for by the government in full, not by crowdfunding. Preferably without an upfront cost that needs to be claimed back. I ‘member the olden days (early 2000s) when kids could get assessed and diagnosed free, and sometimes even adults could.
  2. Support for teachers and schools to include Autistic kids how they need to be included to learn. The feds will palm this off to the states, but schools need to be supported to include all kids in their local schools. They should be provided with the staffing and physical resources needed – space, suitable classrooms, flexibility in policies around attendance and “discipline”.
  3. Family support. Why is everything such a struggle? Recognition that Autistic kids probably have Autistic/ADHD parents and siblings. Whole family approaches to providing supports and funding, not making it a fight for everything, trusting that people know what help they need, but also presenting them with options if they’re not sure where to start – NDIS is too gatekeepy with new families having to ask for specific things that they need but don’t know exists or that they’re allowed to use their funding on. I miss the early intervention social workers I worked with in Canberra who knew every support available and how to get families into these.
  4. Mental health supports across all ages. Basically unlimited psychological supports that people can move in and out of as needed and not just when there’s a crisis. Suitable crisis care – crisis care that actually acknowledges Autism provides guidance on how to get support for that as an underlying thing, rather than just treating the apparently borderline personality disorder, eating disorder, suicide attempt or addiction.
  5. Support to get financial security. Money to start businesses because we’ve probably got good ideas, support to learn how to do the business parts so those ideas can be sustainable. Mentorship – whether in large and small workplaces or in our own ventures. Requirements for government agencies and businesses to understand us and accommodate our needs, and that that is different for each person. You think we’re the rigid ones? We just tend to know after awhile what works for us. Of course I’m gonna say welfare payments above the poverty line, because things don’t always work out and a true financial safety net means not starting from scratch if we go into burnout or have a mental health crisis.

That’ll do for now. *saves draft* let’s look at this thing. Commitments The commitments relate to areas of Australian Government responsibility. Feedback from the community on issues relating to states and territories has been shared with state and territory governments. In any areas of joint responsibility between the Commonwealth and state and territory governments, the Strategy will guide the Australian Government’s engagement with jurisdictions. Social Inclusion 1. Improve understanding of, and change attitudes towards, Autistic people across all of society, through: a. Greater public education and awareness including a better understanding of autism within workplaces, and with a focus on health, education and the criminal justice system. b. Increasing visibility and representation of Autistic people in the media, sports and the arts. c. Increasing accessible and sensory-friendly public and online spaces. d. Increasing the capability of advocates and advocacy organisations to challenge and reduce stigma of autism. 2. Increase opportunities for social connections and peer support. 3. Improve Australian Government service delivery, communication, and information to meet the needs of Autistic people. 4. Ensure consideration of the needs of Autistic people in future amendments to or reviews of the Disability Discrimination Act 1992 (Cth) and associated disability standards. 5. Improve the safety and welfare of Autistic people through the reduction of all forms of discrimination, violence, abuse, bullying, vilification and exploitation.

Of course it starts with reminding us it’s only about what the Commonwealth government wants to do and that while they’re gonna put more responsibilities back on the states, they won’t make them do particular things in return for funding and good luck to you.

Social Inclusion: Ooh good it includes the criminal justice system as needing to better understand Autism. Obviously we want help before that stage in education and school.

Visibility in media – so more characters on tv, or actually autistic actors or exploitative ABC reality shows? I’m curious about how that one about the ACCR autistic journalism cadets is panning out :/

Sensory friendly spaces – I SWEAR the Services NSW has their radio up  deliberately loud outside the quiet hours. Can we just ban commercial radio in public settings? And have Coles radio on low enough that it isn’t painful? more benches in quiet places where I can sit with my shopping til it’s bearable to go back.

Capacity building for advocates – um, fund advocacy organizations, an not just the ones who tell you what you want to hear? And not just around stigma, but about supporting people to access your services, get your funding for therapy, fight your tribunals. And fund legal aid.

Connections and peer support – how we want it, give us the money to run lego and minecraft and flower arranging and train spotting and and anything groups, don’t give it to neurotypicals to babysit us. Train Autistic audits to support younger Autistics and run peer support.

Legal stuff – enforce the antidiscrimination laws we already have, actually penalise people and businesses if they break those laws. Stop letting them please financial hardship – start with government agencies hey?Economic Inclusion 6. Increase meaningful employment opportunities (including business ownership, self-employment, entrepreneurship and social enterprise) for Autistic people. 7. Support employers to hire and retain Autistic employees through improving the accessibility of recruitment processes and fostering workplace environments that are safe and inclusive for all Autistic people. 8. Improve the supports and services available to Autistic people to ensure they have choice and control over their education and careers. 9. Increase representation of Autistic people in senior and board positions to promote people as visible role models. 10. Improve inclusive practices and the quality and accessibility of advocacy resources for Autistic students across all education settings, and their families, carers and support networks. 11. Build on commitment 5 Improve the safety and welfare of Autistic people through the reduction of all forms of discrimination, violence, abuse, bullying, vilification and exploitation to specifically focus on Autistic students in all levels of education.

Economic Inclusion: All great ideas. But they all need enforcement when they are legal requirements. ACAB, but perhaps an Autistic-led way of enforcing the antidiscrimination laws and educational requirements and so forth? They also just need to give us more money and trust that we generally know what we wanna do with it. Welfare above the poverty line as a true safety net. The right to housing. The right to education. Human rights.

The first one about supporting Autistic people to have their own businesses. It needs to go further than a year of the NEIS Centrelink solo business program that doesn’t actually give you any money to start your business. Grants for Autistic people to start businesses, to employ others. Sometimes we just need to be supported to include each other.

iagnosis, Services and Supports 12. Consider the use and consistency of current identification screening, outcome and diagnostic tools. Work with relevant professional bodies to develop a set of standardised co-designed training/professional development and resource materials to support professionals involved in the identification, assessment and diagnosis of autism to improve the experience, and quality of this process for Autistic people and their families and carers. 13. Develop a set of best practice resources to support Autistic people and their families, carers and support networks through the identification, assessment and diagnosis process. 14. Explore ways to improve access to primary care, including through the Medicare Benefits Schedule (MBS), to: a. improve quality health and mental health services for Autistic people, with a focus on continuity of care, and b. explore ways to make Autism diagnosis and assessment processes more timely and accessible. 15. Consider early screening and identification arrangements, and improved access to health professionals.* * Consideration is to be given to how this commitment links with joint work being undertaken by the Australian and state and territory governments as part of Australia’s Disability Strategy 2021-31 and in response to the Independent Review of the NDIS. Details on work to meet this commitment will be developed in Action Plan/s. 16. Improve access to quality, timely, neurodiversity-affirming and equitable supports and services for Autistic people, including for people living in rural, regional and remote areas. 17. Encourage greater representation of people with lived experience in delivering supports and services to Autistic people. 18. Develop a set of best practice training and resource materials for people providing services and supports to Autistic people. 19. Explore the feasibility of a decision-making tool to empower Autistic people to make informed decisions about all areas of their life. 20. Work with states and territories to improve service integration between the NDIS, foundational supports and mainstream services.

Diagnosis, Services and Supports: Make Autism assessment free somehow – whether through brining back the government assessment teams or directly funding assessment by private providers through bulk-billing Medicare items at adequate rates that mean the providers can provide them on demand. Rebated Medicare items lead to people who can’t front the money missing out, and guess what, Autistic people and their families don’t have the cash lying around.

There’s a LOT of resources out there on what is best practice. Scrap funding for ABA. Funding for services beyond the capital cities and major centres is still lacking and a constant difficulty for all disability and health services – more funding through the education services might be a way to reach out to more places, trained teachers in mainstream early childhood settings and schools who can liaise with “specialist” supports and know where to get support.

“Greater representation” of Autistic people / lived experience – this needs to go back to workplaces and training programs being safe for Autistic people and accommodating, they need to accommodate us at the undergrad level of teaching, speech pathology, occupational therapy university programs. It needs to be okay to be neurodivergent in University and TAFE. It needs to be safe to disclose at those places or in workplaces and to have bad days as a therapist. Mask on or off, we need to be supported.

Supported decision making support is lacking across the NDIS. People are being blamed for their providers taking advantage of them where they should have been supported to make their own decisions around support and purchases that affect their lives.

Governance 21. Develop a governance framework to support: a. strong accountability mechanisms, b. co-leadership and active involvement of Autistic people, as well as parents and carers, and professionals within the autism sector, and c. whole-of-government, cross-sectoral and coordinated approaches to implementationResearch
22. Explore how autism research can best be fostered and applied to policy and service delivery and
underpinned by the Strategy’s Guiding Principles.
Evidence
23. Develop a National Autism Strategy Evidence Framework, including a Theory of Change,
Program Logic, Outcomes Framework, and Evaluation Framework.
Evaluation and Reporting
24. Develop a robust Evaluation Plan and reporting mechanism, co-led by Autistic people and the
autism community, for the National Autism Strateg

Governance, Research, Evidence, Evaluation and Reporting: OMG ACCOUNTABILITY. Please stop saying you’re going to fix something, ask opinions on things, consult with people and then never follow up, or hold yourselves accountable. Closing the Gap, for example. It’s just a report each year on how much worse things are getting for most First Nations people, rather than a review that you act on to change what you’re doing.

You’ve on page 8 “Nothing about us, without us”. You know that means more than just consulting? It means actually implementing our ideas and not saying that you can’t because it’s too hard or expensive for the neurotypical and non-disabled people. I need to look at who you have on these committees but I trust in the Autistic members to unmask and tell it like it is. You may be uncomfortable, but when the Autistic people who can’t speak up for themselves are still being abused and neglected and the systems are upholding the abusers rights through funding them or listening to them over us, we get angry and you’ve given us a chance to fix that, so you’d better change things.

It’s not a completely terrible read, so read the plan if you’ve time, but again if they don’t follow through with action and funding why bother?

Listen to us, give us money to do the things we need to do to live, fund our supports, teach us how to identify our needs, trust us.

March Munchies

Another month has gone, hey? Easter’s already happened, and it’s April. Mornings are getting cooler which is lovely, but the days are still high 20s. So let’s see what snacks I’ve been getting into from the foodbank shelves.

Been enjoying the vibe of this brewed lemonade, a nice little fizz for up to $1 a can.

Treated myself to buying my own hot cross buns for the long weekend, but got some jelly crystals at the little church for something different. Still got a bag on hot cross buns in the freezer to snack on this week. Unfortunately the foodbank I was planning to go to tomorrow for breads isn’t actually open (having a week off) so won’t be getting any potential HCB leftovers from the weekend.

The Oranges are going strong. So tasty and I get to wear them as mouth guards lol

I thought only the dog would like this fish jerky, but no the boys have been getting into it too.

Waffles! Got these gluten free waffles as a $1frozen from the local place the other week 🙂 Had them with ice cream and maple syrup that I think came in the Xmas hamper and we’re slowly getting though. Still have a shake and make pancake bottle to use.

Made a “things from the cupboard” dinner last Sunday with things from the cupboard accumulation and a portion of chicken I’d abandoned in the freezer a few weeks ago – butter chicken and rice.

A sweetheart bought a few things off the wishlist, so I’ve been enjoying the fancy porridge and pineapple poppers. THANK YOU!

Slow March

March has been far from slow, it’s the 26th already, Easter is this weekend, but at least the nights are cooling down and I can snuggle up after dark.

Oranges have been nice, which is fortunate since after the flood of granny smiths dried out, I’m eating an orange a day to get through my foodbank acquisitions, and of course to have a yummy snack to combat any dizziness or shakeyness my body wants to do. I started taking a med again that I’d stopped last year, it seems to be keeping the shakes at bay, dizziness not so much. Having a weary slow morning this morning for no apparent reason, but I’m taking my time and getting through my little chores gradually. I have to go to the RMS to confirm that we’ve swapped the gauge cluster in the Corolla before I go for a pinkslip and get its rego done. I’m thinking of doing that Thursday now.

So, it might take me all day, but I get everything done.

Let’s talk the price of Spam

Yeah, the actual tinned Spam, not email clutter.

I know you guys love my “tales from the Foodbank” and I was almost thought I was gonna get a score when I saw there was actual Spam at the foodbank this morning. My partner’s gotten keen on it since we got some I think it a Xmas hamper. So I’ve been getting the $2.99 Aldi tinned Spiced Ham, also proudly made in the USA like the original Hormel.

I fry it up in the pan and service it with toast and microwave scrambled eggs for a midday meal in the middle of the boys’ workday when they come back home for lunch and a rest.

Sadly, I got closer and read the price sticker – 2 for $12. Two for $12??? I pay three for the Aldi version, and the full price at Coles and Woollies is $6.80. I didn’t check the dates on these, I do hope they’re long dated since it is tinned. My Aldi ham has a best before of October 2026.

It’s actually “only” $5.40 this week at Coles, too.

So, once again Aldi wins for price in this little competition. They have put a bunch of prices up again lately though, so I need to constantly keep reassessing. And we know that 1.8% indexation is already long gone from out payments.

Just a girl, hanging out in the rain, waiting for the gates to open.

Welfare is going up a dollar a day from March 20

Well, 96 cents if you’re on Jobseeker. Personally my pension indexation is $1.05 a day. That certainly won’t make any impact whatsoever when it starts getting indexed from Thursday (March 20).

Allowances Family Situation Previous Amount 20 Mar 2024 Increase Single, 22 or over, no children $749.20 $762.70 $13.50 pf Single, 22 or over, with children $802.50 $816.90 $14.40 pf Single, 55 or over, after 9 months $802.50 $816.90 $14.40 pf Partnered (each) $686.00 $698.30 $12.30 pf Single, principal carer of child, exempt from activity test* $970.20 $987.70 $17.50 pf

And don’t worry, Rent Assistance will only be going up about $1.50/week so it won’t help at all with this year’s rent increases.

We saw news articles last week where people are suddenly realising that people who are retiring to the aged pension and don’t own a house are fucked. No real acknowledgement though that that’s already the reality for people on DSP and Jobseeker, and that we’re not really adding to our Superannuation in any significant way to help with those costs if we live til 67.

Personally, my Super has been hovering around $150k since I stopped being a speech pathologist, fluctuation with markets. See how much it devalues over then next 25 years hey, and see what opportunities I have to add to it.

In personal news, I’ve moved sides of the living room. Bruce’s son is moving in this week, so we’re rejigging a bunch of things ahead of that. It means I’m under my hue lights now and have a nice solid wall behind me rather than open room/tv. Now to phona-fy the rest of the corner.