Aaaaaand I’m done

You know when you know you’re over-doing it and you know the end is close but there’s “just one more thing” to attend to and you need to do it NOW otherwise once you sit down, it won’t happen?

Yeah, that.

I flagged it with my psychologist on Monday that I knew I was getting busier and I needed to keep up my resting and other good habits in order to maintain the good track I’ve been on. I mean, it’s great, I went out and socialised for the first time in FOREVER at the Newcastle Greens federal campaign launch. A good few hours socialising, meeting new people, networking. Oh and all sober. Got a diet coke when I go there and ran off nervous energy the rest of the night. I was brain dead by the time I got home, unable to answer questions without a delay. Lol. Those spoons were long gone.

In other good news, I’m so close to having my Disability Support Pension approved after asking for the review when it was rejected last year. an Yvette from Centrelink called while I had covid to let me know that looking over it she wasn’t sure why I couldn’t have been marked as fully diagnosed and stabilised on what she was reading and sent it to be more thoroughly reviewed. I’m told they got in touch with my case worker at the substance use service and also the Occupational Therapist I started DBT with while I was on the waitlist for the public program and have come to the conclusion that I do meet the criteria for treated and diagnosed and then also that I meet the 20 points necessary on the impairment tables which freaks me out a little when I read it but year, I need to admit that I need a lot of support and structure to do more than the bare minimum, whatever you think that is.

So the next step is a telehealth appointment with an external psychologist to confirm I meet the criteria, which will be next Friday at midday. So I’m nervous about that, and worried about presenting well but not TOO well, if you know what I mean! Need to not mask, be honest and open.

How’s everyone going in the weather? It’s just one added thing to my mental load, even though it’s not REALLY affecting me, it stops me from doing the washing, or taking the dog for a walk if I could even motivate myself to do that. I watch the creek, assuming it won’t get much higher. I make sure I have food and medicine and have my phone charged in case. Water bottle filled. Little things that will make a difference if that storm cell does hit. Bruce is working today, for the first time this week, the weather being awful doesn’t make boat detailing an easy doable job. Oh and Maxi needed the vet yesterday another thing on my mental load – I’d finished a telehealth group, there were three new patients, so there was nine of us in total, it was full on, hard mental work even without trying to do therapy. Then i had to adult and take the dog to the vet. That’s why I splurged on chocolate at the service station on the way home and self soothed with m&ms :p

One thing I’ve also come to realise, and to accept and embrace, is that I rely on the meal prep boxes we get each week in order to be able to have the mental capacity to make dinner each night. Having the meals planned and the instructions there means my weary brain can pick up the recipe each night and follow the steps and come up with something nice, something different, something I’m proud to present as dinner for me and my partner. the nights I’ve been too zonked after taking on extra stuff without allowing for the energy, or when I’ve been sick since the Covid hangover is still niggling with a night cough and occasional headache and I can’t bring myself to cook, there’s only so many times I feel okay about Bruce getting us pizza, or us getting whatever is on special on the Maccas app. Though we DID have a lovely “date night” walking up to the local Maccas for cheap meals :p

So, it’s the weekend. My plans for this afternoon are dishes, dinner and relax. Might fire up the Sims or go fruit picking in Animal Crossing. But nothing too braining. My brain is done.

The year begins proper

https://youtu.be/SZNsvUT0DQQ

January is just a warm up for the rest of the year. People and the services they provide are still off on leave at the start, the come back in over time about a week in, taking days off to share child care for the long summer holidays, and more and more working from home due to covid precautions and generally increasing flexibility for the office worker after two years of realising a lot of things and the busywork of offices really isn’t essential.

I remember working over the summer holidays as a school-age speech pathologist. Planning and photocopying for the year ahead, booking up term one with appointments and workshops and meetings and training days. Seeing the older kids, the high schoolers, the ones that don’t do well being pulled out of school or class for appointments, finalising formal language assessments and reports for the next round of funding.

This month, January 2022, has had some planning for me. Goal setting, remembering where everything was working up to before Xmas and this new Covid rush.

So what are my plans for early 2022, now that I’ve taken most of January to re-establish a routine (yes, down to plotting it out on my calendar) and catch up with my therapists and co-conspirators?

Well, I’ve booked in for Japanese night classes for May and June thanks to a semi-anonymous benefactor named Eric who, after me posting about it on Twitter, sent the $310 needed to my PayPal bright and early one Monday morning, making my day, making my week and month! I was seriously buzzing after that, and it really helped me to focus on getting my other plans in place for this six months in order to get the most out of Eric’s gift. I’d already signed up for a trial of Duolingo as suggested by my psych, which is going along well, my hiragana and katakana is still functional but you should see me make the stupidest mistakes on there. The little broken hearts for mistakes do me in! I need to decide now whether to continue with a paid account so I can “clear” and practice my mistakes (and of course use any other feature on there) or just suck it up or you know, just get it right the first time!

I’ll need to start practicing speaking a writing too, speaking I can apparently do on there since I have a mic, but I’ll have to push myself to do writing, particularly so I can actually recognise and use the more complex kanji. I might get a workbook, or printable worksheets. Not sure yet.

Next up, I’m going to be taking part in a series of focus groups for Ausgrid over the next few months. I get paid $1000 at the end which is pretty sweet, so I’ve popped them into my diary and hope we do get to do some of the sessions down in Sydney as planned, cos I quite like a day out down there on the train and a catered lunch :p

Third thing for the coming months is the Federal Election and being involved in the local Greens campaigns how I can. I might be getting involved in the social media role and the advertising stuff. There’s training tomorrow which will give me more skills and information and also includes anti-bulling and “don’t get sued for defo by Dutton” training, so I’ll figure out if I’m up for the role after that! The election could be up to May 24th, and that time will fly once it’s called.

Fourth, but of course the most important, is continuing with my therapy and other appointments and homework. I might need to see if we can change my individual therapy session so I’m available for more or of the lunchtime campaign meetings, but my psych has already said that would be quite alright given it’s a part of working towards my goals. The group sessions are still 2.5 hours on Thursday afternoons. I really hope they go back to face to face in a month or so when we’re maybe past the worst of Omicron, but no one has any timelines, and we were just about to go back to f2f after Xmas, but then the surge hit and threw all that into disarray. The telehealth format isn’t ideal and I feel like brings up more communication problems. I really hope we’re in f2f by the time we’re doing the interpersonal effectiveness module at least!

We’re doing the Emotion Regulation module of the DBT program at the moment, and I’m struggling a little with whether my pushing through is actually opposite action and thus good, or I’m just sucking it up and masking even more and that’s working against me. I’ve more or less concluded that I’m probably autistic, and people I know and respect agree with my reasoning, so I’m trying to respect that part of me, and incorporate the strategies from DBT for borderline personality disorder into my life while learning more about how I inherently function and building on my sensory toolkit and being compassionate to myself and the little girl that struggled for so long.

I’m also still taking Antabuse tablets daily to assist me in staying sober so I can do all the things. At the moment that involves fortnightly visits to the Mater to get the medications and touch base individually, and fortnightly group sessions online using Teams. The group was only two patients, a nurse and the psychiatrist today, and I’m starting to dread the smaller groups to an extent and hope it’s much bigger next fortnight! Group for DBT last week at one point was me, two psychologists and a psych student, so it was a bit intense. At least they run it like we’re all participants when it’s like that otherwise I’d surely run away!

As far as working goes, I have my mutual obligations exemption til the end of June, so I’ll be working on my goals towards being more articulate and able to participate through my therapy, election work and Japanese classes, and look to pick up with a disability employment service in July. I don’t really know what I want to be doing work wise, I have ideas, but we’ll see. My partner is still running his business, and I’m helping out with that by being available, putting out the washing and feeding him. I still claim to be in Facebook social media manager, though there’s not much going on over there at the moment!

I think that’s plenty for me to be committing to for now!

Bring on the election!

Pre-existing conditions, let us count the ways our deaths would be ‘splained away

How good are distractions like the child forklift drivers or the tennis, or Sam Kerr? How good is it not to have to think about the ways the government is happy to put us in danger to maintain their relationships with their donors (how IS Gerry Harvey anyway?) or their so-called principles. I say so-called, because they WILL change on a donors whim (oh who’s laughing now about Djokovic? Certainly not Rio Tinto!)

We sit here looking on in wonder, while Daddy Domicron tells us he’ll have a plan for back to school in the coming days, Labor refuses to call for a suspension on Mutual Obligations (except a lone voice from the ACT, don’t tell me having the Greens sharing the power doesn’t help Labor fulfil their progressive promise!), and I wonder if it’s worth asking my chemist to send me the RATs I get under a concession card out with my Webster Pak’ed mads, even though technically I’m supposed to go in in person to collect them, wouldn’t want us welfare recipients getting something without jumping through unnecessarily dangerous hoops!

Back to those pre-existing conditions, though. The ones that get listed alongside the ages of the dead and whether they’ve had first, second, third or more vaccinations, in order to make the voters feel safe to go about their day, to keep the economy ticking along, because she’s the most important creature in the room and we must be willing to pay tribute to her.

Personally, if I die of Covid, they’ll take one look at my weight and that’ll be the first things listed, more important than my young age (39) or the fact that I’m 2x AZ vaccinated, and can’t get a booster til the 10th Feb, though that will also play a role in their one-sentence obituary. Surely, my mental health will get a line. “Severe mental illness” is not a well-defined term, but data from the last two years is repeatedly showing that people with mental illnesses that have led to hospitalisation are much more susceptible to Covid, even when other factors like a higher smoking rate and socio economics are taken into account. Just be thankful you don’t have schizophrenia and thus be at higher risk of infection at home or in the hospital, but also readily triaged as a lower priority for high level care if I do many to access it.

Doctors and ethicists consider the role of triage and the roll of the Do Not Resuscitate order in a health system in crisis here and abroad (Fury at ‘do not resuscitate’ notices given to Covid patients with learning disabilities), while I see friends on Twitter getting their affairs in order as Omicron circles around them, worried that their disability will not be the thing that led them to getting covid, but the detail that means they are second in line for the ICU bed.

Myself? I’m doing all I can to stay Covid-free. I do my groceries at the quiet times, I see my therapists on Telehealth, I count down the days til my booster is available. I live in my small little world, coddling my mental health, knowing that an admission due to suicidal behaviours would be more dangerous than just letting my attempts to push myself to having a more interesting and varied life sit back for another few months while the world sorts itself out and we hopefully don’t create yet another variant just as I’m wanting to step out to play.

So, for those of you reassured that only those with pre-existing conditions are dying, take a moment to think about why they have been allowed to catch Covid in the first place, and why, in a highly stressed system, their ambulance might be ramped longer or they’ve been prioritised lower for a call from healthcare in the home.

Smol World

Psychologists like to describe my world as becoming very small over the years, to the smallness it is now, where I go out for grocery shopping at the Friday I go to the hospital to pickup my Antabuse, pausing to only see family occasionally, and less and less with Covid conditions kicking in.

I feel small, sitting in my telehealth appointment bringing up how I’m overwhelmed by small things, seemingly small things, like planning and cooking dinner, doing the dishes and clothes washing. I reminded again that “should” isn’t really helping me here. I should be able to manage these things with ease, not feel overwhelmed with the tiniest thing in my routine. Should I be able to expand my world to include going out and about, socialising, working, studying, being the outgoing girl I have been? I’d like to do more, grow my small little world. But it’s scary and I feel small, shrinking away, and useless, so much useless.

I remembered why I felt sad over the weekend, remembering not living up to people’s expectations as a person, as a speech pathologist, as a disability support worker. Not living up to the me on paper, not being able to live up to what I’d set up for myself.

Managers “suggesting” things like eating lunch in the lunch room and being more of the team when I really and truly would not be able to function for the second half of the work day if I forced myself to do lunch rather than going out for a walk on my own. I didn’t do that in the workplace I felt most comfortable in, why would I be able to do that in the one where me and my world were falling apart around me?

Back in uni, in my first speech pathology placement in second year at the local Community Health Centre, I’d scurry up the hallway in the mornings without stopping for the customary good mornings and how are yous. My anxiety just squashing any part that thought that would be of benefit to me or others. That this routine was expected that I needed to take part in it.

I just want to feel on top of my little life, and then I want to branch out. I’m going to branch out – I plan to go to the Greens meeting next week, I have enrolled in a Japanese class thanks to the generosity of Twitter fam. I’ll see my sister and the kids on Friday while I’m out for my Friday stuff, getting an OzHarvest bag I hope, if they even have any given how sparse the supermarkets have been, will there be hand-me-downs available for us?

I have a lot of bad dreams, about school and uni and work. Always never fitting in, always out of place and struggling to fit in. I have so many memories about trying to do the right thing and just not getting it right. Who knew the rules were so simple and yet I could manage to get them wrong?

I’m pleased to have my Twitter family. My smol world is much bigger with you. x

Tempting Madness

I only really needed to do one adulting thing today – take the car for a rego check – but it seems I let the weight and distraction of the world build up on me, over the day, and let it all hit me shortly before I needed to go.

Spoiler alert- I did get the rego check done, it was passed with no issue! Yay!

I don’t know how it started. last night I went to bed with an overdrawn bank account because the bills came out and I’m a silly little girl who, when she got her JobSeeker payment 5 days early with the public holidays over Christmas KNEW she was likely to mis-assess her spending in this time and would come up short a little early this extended fortnight. And I tried, I really did, but one day off on the bills. Silly little girl. So that started it I guess.

Bad dreams overnight? I think so, keep having highschool and university people and places and events. Keep having difficulties at them. No, I DON’T want to relive any of that tyvm.

Got up, had coffee, and breakfast and meds and made small plans for the day – washing and washing up and getting the rego done. Also take the dog to do the recycling so he gets a run and I get the diet coke cans out of my car before the rego check. And Have $10 extra to put back into my bank account. (I hate hate overdraw fees! I’m already broke when you charging me $15 more RIGHT NOW??)

So, took the dog out, he had his run and his poop. It rained a little. Did the recycling. Didn’t really have to interact with anyone. Nice.

Came home, did dishes and stuff. I don’t know what happened here. Oh yeah, Bruce got home to have lunch and was talking to me about an injured bird and going out on a boat with his boss and the waves and he brought in a parcel for me (omg A chewy necklace from my wishlist

which I honestly hope someone else purchased for me because it’s not on record of my amazon purchases and I can’t remember ordering it but I think I have a memory of thinking about ordering uit, and this is why I don’t have a credit card anymore because I honestly impulse buy and don’t remember and it’s totally a BPD related thing) and I was focussed on that and figuring it out and not listening and got all a flustered when I realised I hadn’t been taking it in but making all the right noises and I’d lost 10 minutes.

Then Bruce checked the lights in the car and had to change 2 bulbs and went to get them from Repco 5 minutes before I was meant to be up at UltraTune for the inspection, but that was okay too and it worked out.

But then WHY did I go into Coles while I was waiting? THAT was a silly choice, I didn’t even want to buy anything, and yeah

So It’s taken the rest of the afternoon to wind down, with chewing things and frozen poppers and sensory tools and Animal Crossing and I made dinner and I think I’m almost human again but I’ve lost time. And sanity and I know this is the first real day I’ve had like this, and some of it was Covid stressors, like the two deaths in Lake Macquarie overnight. Two more since the two from the aged care. And that got to me. And sent me slightly spiralling, and then it got worse from there.

I know it’s unlikely that if and when I get covid it

ll be bad for me personally, but what if it’s not? So glad the family had Omicron over Xmas, not glad they were sick but hooping that means they won’t get worse ones down the track. My sister is exhausted from it still. But she never gets to rest. The Pope says I’m selfish for not having kids. I don’t think I could do what my sister does. I’d have gone off the deep end further and sooner and repeatedly.

I’m scared to tempt fate though. Relieved I never had kids but sad about it nonetheless.

Add me on AC? Friend code SW-0541-2956-7407